FD Fundraiser PART 4 – Philadelphia Phillies @ Arizona Diamondbacks (09-19-25) #phillies

FD Fundraiser PART 4 – Philadelphia Phillies @ Arizona Diamondbacks (09-19-25) #phillies

[Music] [Music] graduated from Rowan University in the spring of 2022 with the sports communication and media degree. I got to actually call minor league baseball and G-League basketball games while I was in school. And then I graduated and as soon as I graduated, I went to NFL Films in Mount Laurel, New Jersey. And as much as I love that experience, I miss putting on the headsets. I decided, you know what? Talk is cheap. I have a laptop that’s in my house. And so 21 months later, here we are still on YouTube calling games and building an incredible loving community on here with the people that I call my Philly freaks with a capital P and a capital H. We go live for every single Phillies, Sixers, and Eagles game. And we do it like old school radio playbyplay style. I’m Jason Joseph and this is playbyplay with JJ. I showed a swung on barrel out to right field. Boy baseball that baby is long gone. Hi everyone. Hopefully you’re all doing well. For those of you who haven’t heard, I’m hosting my very first charity stream on September 18th and September 19th to support the Familial Dodenomia Foundation in honor of my brother Mitchell who passed away from this disorder 5 years ago. So how the schedule is going to work is like this. On the very first day, we’re going to be streaming for 15 hours. During the first three hours, I’ll be talking about familial decodomia, sharing stories about my brother and what he dealt with on a day-to-day basis and just raise as much awareness as we possibly can. Then during the next 12 hours, we got MLB Diamond Zone and we will be on doing our regular Diamond Zone stream. For those of you that don’t know, MLB Diamond Zone is something that I came up with and basically it’s like NFL Red Zone, uh, but it’s for baseball. On the very next day, we’ll do Diamond Zone again. That’ll be from 6:00 up until 9:30. And then we got the Phillies game. They play at 9:40. They’re taking on the Arizona Diamondbacks. So, in short, we’re going to be on for 22 hours. No ads will be played during those 22 hours. I am aiming to raise $500 during those hours of streaming. Again, no pressure to donate, but if you can, every little bit does help. If you could just spread the word, share the post that I posted on my community tab, I would really appreciate that. I’m just looking forward to making a difference together with you guys and doing this in honor of my brother Mitchell. I think he’d be really proud and I’m really excited about this. Let’s do some good. Okay. So, [Music] okay. So, this right here is the website. This is the familiar Dodonomia website here. And we’re just going to we’re just going to scroll down and we’re just going to go through things one by one. We are at $327 right now. Let’s go. Oh my gosh. We We have raised $327 right now. I might actually have to up the goal as we as we continue to go through this. That is so awesome. 327 330 330. Wow. Great. That’s That’s awesome. Shout out to that. We’ve raised $330 so far. Wow. All right. So um so so basically so FD as it says right here it’s a genetic uh disorder that affects the autonomic and sensory nervous systems. Um FD is it’s it’s found in Ashkanazi Jewish heritage which is Eastern European uh Jewish heritage. So ancestry uh is where it all began. Uh, it’s one of the rarest diseases with only 350 people currently living with FD worldwide. It’s really not common. Um, it’s it’s really really not, man. Um, so it’s it’s not common at all, but they have a medical center out at NYU, which is where we went to for all of our doctor’s all of his doctor’s appointments. And uh the and the staff there was really awesome to us. All the doctors that were there, they were great. They were really awesome. Dr. Axel Rod was awesome when we had her um and everybody else that was a part of the whole uh clinic and and the team. FD is inherited in an autotosomal recessive manner. Uh so both or yeah when both otherwise healthy parents pass on their uh the copy of the mutated I they call it the IAP gene to their unborn child. Um everybody in my family got tested for it. So basically my mom and my dad were carriers of the gene and they had and my mom can correct me if I’m wrong here you know just based on the stats a one in4 chance of having a child with FD. So of course they had Mitchell and he had it. Now my aunt is a carrier. Okay. My mom and my dad are carriers too. My sister is a carrier. I don’t know about my grandma. Was my grandma a carrier? I don’t know. But I am not a carrier. I’m not a carrier. So that means that whoever I I marry, we’re not going to have a child with FD because both parents have to be carriers of the G. The one thing that you’re going to learn about today is how important it is just to get tested. um just uh and and and how important uh genetic testing is just to make sure that any of you guys that are out there aren’t carriers of the gene. Um but yes, I want to donate. Is there a secure website? Yes. Um here they are. That’s yes. Uh here it is really quickly. I’m so sorry. Let me post it again. Uh oh, there it is. It’s right It’s uh Where is it? One sec. I should I’m going to just keep the email up really quickly and let me put it on this browser. One sec. I do have a timer that goes out that should be able to show you the link, but I posted it for every five minutes. Um, but yes, one second as I find it. There’s my channel. Here’s the link right here. Yes. Okay. This is the link right here. It’s also attached at the very very top of the chat, too. There it is. So, yes, there it is. Okay. Um and and mods, if you could just if you could just post it. Um if I’m not looking at chat because I’m going to be trying to go along here. Uh, please please do that if you can. Just copy and paste that link um and just continue to post that. So, let’s get rid of this for now. Um, let me do this. I did I did pin the link. I did it. It’s It’s pinned at the very very top. I did. I forgot that I pinned it. It’s right here. It’s right over here because I’m dumb. Um, what did mom say? You got two good copies of this gene. Mitchell got the two bad copies. We never heard of it before he got his diagnosis. Correct. Correct. Yes. I’m happy that he did say that. So, yes, there’s there’s the link right there. I’ll just remember to copy and paste that. Um, going back to this screen right here. It says on the site, so infants are born unable to sense information coming from inside their own bodies. All the normal bodily functions we take for granted are gone um already in in people with FD. So basically he could not feel temperature or pain. Okay, the the most striking symptoms of FD are reduced sensitivity to pain and temperature. So again, if he were to go touch a hot stove, he wouldn’t know if he burned himself. He wouldn’t know if something was really really cold and if it was, you know, like an ice cube or like just the temperature of that type of a thing. Um, so the one thing that we also had to remind him of because also he couldn’t feel pain was he would bang his hands and he would also bang his legs too because to him he didn’t realize that he was hurting himself and he didn’t really know better. So what he would do is whenever there was a sound effect on during a movie or something and he would hit his hand like on the desk or or even like on the chair or whatever it was, we had to tell him no banging. The nurses had to tell him to no banging because he could hurt himself that way. And we had to uh I mean I mean my gosh we had to take him some of the time to uh uh you know to get x-rays and just to get checked up on because sometimes he couldn’t even tell us if he if he hurt himself you know so he couldn’t really communicate that. How would he know if he would hurt himself? And so we always had to look out for signs just in case something was weird, like if he was walking oddly or if or if something just wasn’t right, we would have to get that stuff checked up on. And so that was kind of scary. I mean, that’s that’s the best way that I could put it. Um, so yes, he couldn’t feel temperature or pain. He also couldn’t produce tears as well. Um, so he couldn’t cry. uh that that’s just that’s just something that comes with the disorder. Um so he had to get eye drops uh the theta tears to help him uh you know just get water in his eyes and then get the fluid in there. That was really important. Sometimes he would also going back to the whole temperature and pain thing he would actually put the DVD player. So, he had a personal DVD player that he would use that he would actually put right to his eye directly and he actually got a corial abrasion from that. Um, and we were really lucky because we had some awesome doctors including the eye doctor who uh we still talk to a lot. Uh, she’s awesome. She’s really great. Guys, we have raised $43260. We’re at $43260. That is just unbelievable. Wow. We’re like only an hour into this, man. Just an hour into it and we’re already at 432. It’s insane. But yes, so he would put the DVD player to his eye and we would have to watch out. And especially when my when my mom was his caretaker and we didn’t have nurses all the time because of insurance and all those types of things, he we had to keep extra eyes on him and he would do some he would do stuff like that. And sometimes like what he would actually do was he was really uh he he was he was really like a kid, man. He would sometimes watch the nurses go away and he would do that and I’d be watching them and I say, “Mitch,” I’d say, “Mitchy, can’t do that.” And then he would get mad. But yes. Uh so yeah, so he was uh he couldn’t feel pain, could not feel temperature, uh inability to produce tears, needed eye drops. Um he also had very unstable blood pressure. uh which was also really scary as well. So he his blood pressure could be really really high or it could also be really really low to the point where he could pass out and we had a lot of oxygen tanks in the front of our house just for that reason. Um there was a time where he would actually like legitimately pass out on Saturdays on Saturday nights for whatever it was and he had to be on a heart monitor for a little bit of time because the one thing that’s really common with this disorder is just the imbalance of blood pressure of blood pressure. So the nurses whenever they would come on over, they would have to they would have to take his pole socks and they would have to uh test out all that type of stuff every every hour. Um and if he was sick, if he was not feeling good, then they had to do it of course more. Um so yes, oxygen tanks were were absolutely huge. Uh so anyhow, uh that was something that was really scary. of course that we had to, you know, that he had to go through. And yeah, um he would go sometimes into crisis, uh which is basically episodes of of uh of psych cyclical vomiting. He couldn’t really vomit. He had a funiplication when he was younger. So that way because he couldn’t eat by mouth either. And I probably should have said that too. He was tubefed. He was He was tubefed. He could not eat by mouth. Could not eat by mouth at all. Um he was totally reliant on the feeding tube, a GI feeding tube. And he had a button that would we would attach the feeding tube to and he would have to get fed uh certain feeds and certain meds every single hour. And if he was sick, he had to get more meds. Um, and we actually had uh nurses pre-draw the meds like through syringes and they would have to learn how to how to do that. So, um, but yes, so he was tubefed and he needed he needed that. So, inability to suck or swallow. Many individuals affected by FD must use feeding tubes as I just met as I just said just to get proper nutrition. Um he also did have poor growth. Uh he he didn’t he didn’t grow uh much. Um there was something else I wanted to say too. Um I forget what it was but yeah it was it was a lot to deal with. It really was. vision problems as well. Um, some people that that have FD are blind. Um, and most certainly do have vision problems. Mitchell didn’t go blind, but he definitely did. Um, as he got older, he did have more vision problems. Um, I’m trying to think of what else. Other respiratory, cardiovascular, orthopedic, digestive, and vision problems. He had to he had to have a BiPAP on at night. He always made we always made sure that he got oxygen. He always had a night nurse. Um sometimes it would really suck because the night nurses would call out sick or if the weather was really bad or whatnot. Guess who had to stay up and watch them even during the night? My parents did. My parents did. So they they really sacrificed a lot. Um, and they did everything that they could just to give Mitchell a very good quality of life and I will always be super grateful for that. Um, but yeah, so he couldn’t swallow my mouth. Uh, living with FD is a a daily challenge filled with unimaginable obstacles for those who are affected as well as their families. Guys, we didn’t really I didn’t really take a lot of trips when I was growing up. Um, but whenever I did stuff with my family, it was always really special because we always had to pack a lot of stuff. We would have to overpack oxygen tanks. He had a vest that he had to that he had to wear just for his respiratory, you know, getting getting junk. We had a cough um and other types of medical equipment that we would have to take with us that had to have been packed beforehand. That doesn’t even include the clothes and the feeds and and all the meds. So, whenever we did go somewhere, we always had to make sure that we packed a lot of stuff. He was also in a wheelchair uh and we had to take a portable wheelchair with us. Um, and we would put that in the van. So, we had to put him in there. And even if we went to like Sesame Place because he loved Sesame Place a lot. He was a huge fan of Sesame Street. Um, but yeah, that’s that’s how he was. He was not really He could walk short distances, but he definitely could not do, you know, like him even going to the bathroom. My mom Oh my gosh. Um my mom sometimes like ju just made sure that she brought that oxygen tank with her every single time. Um and and I would too sometimes because he would just go to the bathroom and we had to make sure that we brought that because he could he could pass out from exerting energy from that. Um and especially from like walking up the steps just to go to bed at night. Uh so that was really important. Um, are his problems typical for those with FD or do they vary? Very typical. He was on the very severe side, Larry. He was on the very, very severe side. Um, I wanted to shout out really quickly. Uh, Judy, thank you so much for the donation. Wow. Oh my gosh. Tom, thank you. Mark, thank you. Travis. Uh, David, David Tolheimr, thank you so much. Jamie, thank you. Uh, Jack, oh my gosh, Jack, what? 90. Oh my gosh, Jack, thank you so much. Don’t make me cry. Thank you guys. Wow. Um, but yes, he had he he he had the most severe uh of of them all for sure. He was he was on the very very severe side. Uh here’s 10 FD quick facts that they have. FD is caused by a mutation of the ELP gene, which is known as the IAP gene. uh over 99% of the patients inherit two copies of the Ashkanazi founder mutation dating back all the way to the 1500s which is really just wild to me. Uh most parents of newly diagnosed children with FD are unaware of their Jewish heritage and that is definitely true. Um I believe that there was somebody I forget how long it was maybe it was like six or seven years ago they didn’t get a so they were out in they were from Mexico and they got a diagnosis over there which was really wild and somebody actually I believe too at the NYU medical hospital they they didn’t know uh but there was a diagnosis it just so happened to be right at the center which was wild too. Um, patients have similar symptoms, but the severity may vary. And again, Mitchell was on the very, very severe side of of FD. It affects the survival of the nervous system with the brain and the body. Mitchell couldn’t talk in typical sentences like you and I can. He would talk in very short sentences. Um he did go to a day program. He went to an awesome 21 plus school um where he did have to I mean of course the nurse had to go with him. Um but he definitely got a lot of socialization and he got a lot of um he he he got so much love over there. Um, and I was really one of my proudest moments was uh there was this girl that he liked uh and I don’t know I don’t know what it was but she really liked him and she thought that he was really funny. Um, let me stop this really quickly. Um, there was this girl that that he really likes and uh they had this they had this prom at this 21 plus program. uh uh place. It’s it was called Holly Dell. Um and they they went out to the prom together and I was there and and I was there with my dad. We got him up out of the chair, got him away from the DVD player and he was dancing and he like looking into his eyes. He was so happy with her, you know, and just to be able to see that was just one of my favorite moments. I didn’t expect to get choked up, but just to get him away from the DVD, just to get him standing up and not even have oxygen, that was one of my proud moments. So, oh, I hate crying. I didn’t think I figured I was going to cry. Um, but yeah, that was really, really cool. Oh, man. I need to take a sip of water. Oh, man. Deb, thank you so much. What a great way to honor Mitchell. All the best. Thank you so much. I really appreciate that. Um, what else? Let’s go back to the screen share here. Uh, let’s go back to this. Yeah, there it is right there. It’s an emotional day, my man. Don’t worry about it. It’s all good. Thank you, my cousin Jeffrey. Shout out to you. Thank you. Thank you so much. H man. That’s great. Um FD does not have a cure. There’s a there are symptomatic treatments that that do help patients feel better and that do help uh them live longer. I mean, he was on so much medicine, guys. We could actually It’s funny. My mom would say that sometimes we had a pharmacy at our house because he was on so much meds. Um, and there were certain things that definitely did help him uh get better for sure. Um, but antibiotics and and stuff like that. I mean, I’m sure that my mom could probably chime on in or other people in my family that could probably think of some certain things that really did help him. Um, but yeah, there were definitely some things that were good. Um, but yes, patients have less sensation and are at risk of injuries, having uh difficulty localizing pain and regulating their body. Um, another fact is that lung disease is common and requires a proactive approach to treatment. The NYU uh dysotonomia center, they’ve existed actually for over half a century and they’re dedicated to FD patients 247. The other name for this disorder to was called Riley Day syndrome. Riley Day was the first one that was diagnosed and again mom please correct me if I’m wrong about that. Um, but that was back, I believe, in the 50s. There’s a video on here. Um, I you guys can go check this out. Um, but yeah, that’s uh I’m trying to think of other things just to say about it. I mean, again, I I said this before and I’ll say it again. you know, when it came to just growing up for me, um, you know, my family didn’t really take a lot of trips. And the one thing that I that I loved about that I love about my mom really, and this is like what makes her an angel, we would take so many trips to to New York just for doctor’s appointments and all that stuff was really hard. and even just staying over at the NYU hospital overnight, especially when he had his fundlication and his scoliosis surgery for his back. My mom was just somebody that, you know, really tried to even advocate for my sister and I. and she wanted us to be able to experience New York for good as well rather than just going to NYU for like the, you know, for all those hospital visits and all those doctor’s appointments. So, we did get to do stuff that we all did enjoy, including my brother. We went to go see some Broadway shows, which was so awesome. Of course, he fell asleep during Lion King and he would fall asleep during some of the shows and it’s like we’re here for you and and we’re here for for us too, but we wanted them to stay awake for that. Um, but yeah, so we would go see we saw Lion King. We saw The Little Mermaids. We saw Tarzan on Broadway twice, which was really cool. We got to go see the very last Tarzan show, uh, which was also really, really awesome. And uh I’m trying to think if there’s any other shows that we did see. I said Little Mermaid. I said Tarzan. I said Mary Poppins. Lion King. Um Shrek. We did get to go see Shrek the musical on Broadway. Actually, one of my sister’s uh friends from high school was uh when they were doing when they were doing Shrek and they were doing the tour at the Walnut Street Theater. Uh she she played Fiona. Um and it was really cool because we got to go to to see her and uh Mitchell really really enjoyed that. So that was really cool, too. Um but yeah, so a lot of stuff, man. A lot of a lot of things. And you know, growing up for me was definitely I I never looked at it as as a curse. I always looked at everything that happened like even the nurses even the nurses that were a part of our family and and and that were really close. Like we still have a nurses day that we do. My mom likes to do it in November where she gets the nurses to come like some of the night nurses and the people that really cared for Mitchell and the people that stayed with us for a really really long time. Um she wanted to uh dedicate a day to them and have them come on over and just, you know, get together and reconnect, which is really nice. Uh but yeah. Yeah, it’s crazy. Riley Day was the doctor who first diagnosed the disease, says says my aunt. Thank you, Janice. I I I do appreciate that. I And yes, you were right. I don’t know why I said the first patient. Um but yes, Dr. Riley and Dr. Day first described it in the 50s. Yes. Yes. Now I now I do remember. And see, this is why I’m really happy that I have my family on here, too, because, you know, they it’s it’s a lot for me to even just carry by myself. And there might be some things that I that I mess up on, but I’m hoping that I’m given pretty much all the facts if I if I don’t really hear too too much else. I think I’m doing a pretty good job. Um, we do get to go to Disney World. That was really cool. We got to go there twice. We did it through the Makea-Wish Foundation the very first time and the second time that we went, uh, that was awesome, too. Um, again, like we didn’t really get to fly much and we didn’t really get to travel because he was very medically, uh, he had a lot of medical needs. He just did. Again, like he needed oxygen. He needed like he needed so much stuff. It’s, you know, I could I could just go on and on and on. And again, like and again, for those of you that are just tuning on in, uh, right now, I am going to have this on replay. You guys can certainly go back and you can watch everything that that, uh, that we’ve been talking about. Um, and we can we can go over some more stuff there. If you guys do have questions, please feel free to ask. Um, and again, I do want to take this time uh to actually mention that guys, we have we’ve gotten our first goal. $520. Let’s go. Let’s go. $520 already. Wow. We’ve already surpassed it. And we’re not even We’re not even an hour and a half like Yeah, we are an hour and a half done. Wow. That is That’s incredible. Wow. So, we have we have passed 500, man. Yes. Um, but my gosh. Yeah. Wow. Uh, that is so great. That’s so awesome. Paul, thank you so much. Um, you know, for for the donations. Uh, Mitch, thank you so much for being on here, man. I hope all is well. I love you, buddy. I I really really do. Yeah, we’ve gotten 500. Wow. I can’t believe it. I can’t even believe it. It’s absolutely insane. Um, yeah. Yeah. I’m trying to think of other things. The one thing that he really taught me, the one thing that Mitchell really taught me was how to how to care for other people uh and to recognize other people who were in need. So, I don’t really like to I don’t really talk about this much, but um I I was in I was in resource classes when I was younger. Um I had I had learning disabilities and I had I actually uh have I have my own disorder. It’s called a short chain ascohydrogenous deficiency which is in short scad. Uh that’s that that’s what it is. Uh, it’s basically I could go on into it, but and I could talk about it further, but I don’t want to make this about me. But I do want to say that um, when I was really young and we were at NYU, um, the doctor who uh, helped take care of Mitchell and and dealt with with all his needs, her name was Dr. Axelrod. I talked about her a couple of times. She noticed. She was the one that noticed and she talked to my mom and she’s and she actually got me help because there there was something that that she noticed that that wasn’t right with me. And if it weren’t for her, honestly, I I wouldn’t be uh where I I don’t I don’t know if I would be right where I am today. uh she really helped out with that and she was the one that that saw signs that that there were definitely things that that weren’t right with me. Um and that was that was a blessing that ended up coming out of this. I could get on into like I could go into so many different rabbit holes. Um I could get into uh so many different things. And again, you know, you guys can read uh my family members are also in the chat as well. They’re going to be sharing stories, too, and they’re going to be giving their own insight on things. Um, and of course, for those people that obviously did know him, they’re more than welcome to come on and share stories about Mitchell as well. Uh, which would be very, very awesome. But yeah, so I will actually pull up uh the website again. I will pull it up once again. Um yes, here it is. Uh so again, you can go you can go check this out yourself. Um, as far as the programs do go, if we take a look at that, they have um, and and we talked about this, Elenie and I, when I did my sit down interview uh, with her, we talked about the Hangouts program and um, and some of the other ones that you’ll be able to find on here, mental health counseling, virtual game nights, um, and all that type of stuff when it comes to just their programs. Let me go back to this and let me get rid of this really quickly. What’s going on, Mitch? And again, thank you all so much for all the donations. Again, the the link is posted at the very top. It it’s pinned at the very very top of the chat. Uh but if you guys can’t see it, um I am also posting it again right now. I do have a I do have a a bot that posts it about every five minutes or so. Um but yeah, so here it is. Uh yeah, I’m trying to see what else do we have on here as far as the history goes. Oh, that’s great. I love that picture of them. I didn’t show this to all of you guys. Uh I don’t know if you guys all got to see this, but uh I did have I’m wearing a Batman hat in honor of in honor of Mitch. Uh he really really loved Batman. He was a big fan of Disney movies, too. He loved Pinocchio. He loved Peter Pan. He liked all the villains. He loved The Little Mermaid. Pete’s Dragon. I don’t know if you guys have ever heard of that or have ever watched Pete’s Dragon. He liked Johnny Bravo. He was a big Johnny Bravo fan. We actually um had a recording of Johnny Bravo sending a message to Mitchell and he we would play it for him sometimes, especially like when he was sick. So that was really cool. Mitchell always loved it whenever we would sing to him. Uh so he would watch the same movies over and over and over again. He would call his movie He would call all the movie characters to like all the Disney movies. He would call them his friends, which was like so sweet. It really was. Um he he had a lot of compassion. He was uh he was just an awesome guy. He really was. Um, but yeah, so he always loved it. Like when Alyssa and I would sing to him in the car, my my dad made him uh when when they had CDs in cars and stuff, my dad made him a whole bunch of songs from like all the soundtracks like Beauty and the Beast, Hercules, and Aladdin, and so many of like his other favorite movies, The Jungle Book. Um, and we would always sing his songs in the car because you have to also understand too that he could get himself sick, which was also really scary. So, it was really hard to get him out of his comfort zone because he could get sick and he could make himself go into crisis and make himself sneeze and make himself sweat and, you know, have fevers. So, if he wasn’t happy, you know, sometimes we would have to, you know, I would ask him if he wanted another movie just to just to make him uh, you know, just to make him think about something else. And you sort of had to like learn his language. You really did. Um, he was really funny, man. Oh my gosh. Okay, we had one nurse. Shout out to her. Okay, she is awesome. And we still see her at the nurs’s days every single year. And she doesn’t live that far away. Okay. She’s from Nigeria. Okay. She has a hard accent. She does. And Mitchell was very clear with like what he said. So if he if he said that he wanted to watch Batman, she would say, “Okay, I will put on Botman.” No. Botman. Batman. So, he had a really good sense of humor, you know. It’s was really really funny and it was so adorable because he didn’t know better. But yeah, he had his own Mitchellisms we call them. Um, which was also really really nice. Um, you know, he would have his own sayings. He would call me my name was Tessa, not Jason. That’s that’s how he would say Jason. My sister, her name is Alyssa. He would call her Sa Isa. That was that was how he pronounced her name. And again, I do have a video and I have a documentary that I did on him when I was a senior in high school that, you know, that you’ll guys be able to to see in a little bit. Um, and then of course the interview that I did with Laney, um, and we go more in depth with just the Disotenomia Foundation, we talk about the new research that’s been done and get more into the technical side of things rather than just talk about the disorder itself. Uh, but yes, so it’s really really cute. But yeah, we always had to sing his songs in the car. We did. And Alyssa and I would like recite lines and we would know every line to like all the Disney movies that he watched and even all the Batman movies cuz he would just never get tired. He would never get tired of them. Guys, we’re up to $57165. [Music] And again, everything that’s donated through the foundation is getting doubled. It’s getting doubled. So really, right now, we’ve raised over $1,000. Wow. Wow. I guess I got I guess I needed to set the goal higher. And I am going to change the goal. I will do that right now. Um Oh my gosh. Jack with a $50 super chat. Jack. Oh my gosh. JJ, your account of Mitchell’s challenges is a reminder that no matter how bad you have it, there are many others facing even bigger challenges. My daughter was born with a hole in her heart and no right lung. She’s 38 today. We’re blessed, man. Shout out to Jack, man. Shout out to your daughter. Wow, Jack. Thank you so much. Wow, that’s insane. I’m I’m gonna of course keep track of the YouTube stuff, too. Um, thank you so so much, Jack. Um, all right. I will answer questions. If you guys do have questions, please like feel free to ask whether it’s about FD itself. Again, I will I will post this whole part in a separate VOD so that way you guys can understand uh and and and go back to the whole video yourself in case those of you that are not here um or missed it uh you’ll have access to that stuff. Jack, thank you so so much. I really appreciate that. Appreciate your heart, man. You have wickets bigger than JT. Wow. Yeah, he loved Johnny Bravo. Yes. Um, I’m trying to think. The one really cool thing, too, was that when we went to go see Aladdin the musical, we got My aunt was always so good at like trying to track people down to see if, you know, if they could stay after and come talk to him. Mitchell got away to get Mitchell away from his DVD player. It re you have like no idea. It took so much. And Jafar was she tracked down Jafar and uh we stayed after and we got to go see him and he was so happy so so happy to see Jafar and he was still in his makeup. It was it was the actual Jafar too. It was the actual actor Jafar. It wasn’t you know like you know you know from the films from the films Jafar. Yes. And he had the voice and everything and his his face brightened up so much. It really did. It was so awesome. So Kathy. Oh man. Gh. Hey JJ. I’m tuning in from Arizona this morning to support you, your family, and your efforts to bring awareness of FD. Much love. Glad to hear you already met your goal. Keep reaching for the stars. I’m going to change the goal right now. Um I want us to get to a thousand. I I got to keep pushing that goal. Um I’m going to do that right now. Can we get to Can we reach 1,000? $1,000 and hit our second milestone. Absolutely. Yes. Let’s do it. There we go. Yes. Oh man. Um Kathy, thank you so much. And again, Jack, thank you so so much. Um Jack, what you said is right. Jack, you’re the freaking man. Thank you for the $50. Yeah, it’s just great. It’s It’s awesome. Oh man, really enjoying your fundraising stream and all our Philly freaks in here with their generosity. I know. I know. And again, I’m leaving this up until uh uh tomorrow, too. You know, we’ll be doing this during the Phillies game as well. So, it’s not even just for today. We’ll be definitely extending it to tomorrow as well, 1,000%. Um yeah, it’s great. I need a sip of water. But yeah, please like feel free to ask questions, please like feel free to do so. Um, mom, dad, uh, aunt, if you guys have any more things that you’d like to say, like even even like the the cousins or the nurses, if you guys have any stories, feel free to share. I’m not trying to not trying to put anybody on the spot, but just getting other perspectives uh always certainly do help. Um, for sure about FD. The something else I think that I forgot to mentioned too. So, I talked about blood pressure and uh and that type of stuff. Um, so he couldn’t eat by mouth. I I said that too. So, he did have to go to the dentist like once a month. Um, and he had to get a lot of a a lot of stuff done because he would build up a lot of calculus because he wasn’t eating by mouth. And so, that was another thing that had to be done too. And the dentist, man, she’s excuse me, she was really awesome to Mitchell and she loved loved Mitchell and she still is really close with my mom and we’re still close with the whole family over there. We’ve been so blessed. Uh we we’ve seen so many awesome doctors. Again, I talked about it before. He when it came to his eyes, um he he saw an eye doctor. She was great. actually during co uh one of my one thing that really stuck out to me was that she does not live far away from from where we are and during the shutdown during the pandemic Mitchell had a coral abrasion and because he would put the DVD player to his eye because he couldn’t feel temperature or pain. So, like when we were talking about the banging that he would do before for uh you know sound effects that were being played like on the TV um he would he would bang his hands like on on the chair or he would do it with his feet and he could hurt himself but he would also put the DVD player like a portable DVD player that he had that he could hold. he could put that to his eye uh because he couldn’t feel anything and he burned his his eye like not to get like too graphical but he had a corneal abrasion and my mom was really really good friends with with her and again I I I keep saying it as if it’s in the past tense still is really good friends with her and we all are. Uh but she my mom pulled up right to her driveway and she saw him like right then and there and she came out. She had all of her gear on and she she took care of him. We were so lucky that we met some incredible people that were more than just doctors and more than just nurses, you know, they were family. But also, I want you guys to understand something else, too. Okay. Even like when we tried to make the most out of everything that we did, including myself, you know, when things were not good, okay, when Mitchell was happy, everybody was happy because it was not a lot of stress. But when he would get sick, when he would need oxygen, when he was ready to pass out, when he wasn’t feeling good, it was all hands on deck. And everybody in my family, it didn’t matter if it was my mom or my dad or or if I was there, everybody knew their role, okay? Somebody had to go grab the oxygen tank, somebody and and make sure that the oxygen tank was on and and put it on him. and somebody else tried to talk to him, you know, just to see if he would respond, talk about his movies, you know, talk about uh talk about like whatever it was. And we had to just instantly react and problem solve in the moment. My parents didn’t argue about those types of things. They knew exactly what to do. And when it came to big-time decisions about uh nurses and about staying at different facilities to get the right treatment, they never argued about those types of things. And even like when my sister and I had to watch him, you know, if my if my mom was busy doing something or if my dad was upstairs working, we were on the same page for everything. And it was just something that we had to deal with when when uh I was growing up. So I want you to understand that too because also the other thing about it that I didn’t mention was that he didn’t always have 24 hours of care. So that was the other tough thing too. So the nurse, the day nurse could be working from 8:00 to 4:00 and then the night the the evening nurse if we had an evening nurse that night would come at like 6:00. So that would mean my mom or my dad but mainly my mom would have to watch him for 2 hours. Um and if my mom had to like do something or like go go run an errand, guess who she had to take? She had to take him pack up his meds, pack up his his feeding tubes because he had to get fed every hour by feeding tube. And so it was just a lot. It was so much to deal with. Uh but we did it because we loved him and we wanted to give him the best quality of life because not a lot of families would do that, you know. And I’m not trying to flex or or say anything, but I’m just I’m just saying like that is that is the truth. They really needed to have have patience and be able to uh uh you know, be able to just do those things. Even if it was just going to the grocery store, my mom had to take him with her, take the oxygen, take a bag of movies. And actually, he was really funny too about that because my mom would be driving or and I would be in the back seat or even if she even if I wasn’t there or if my sister wasn’t there, he would ask for a different movie as she was driving, you know. So, he would do it on purpose. Um, but yeah. So, but yeah, insuranceances, man. I could get on into that and I can get into the bad nurses. I mean, we had a whole list of nurses, like a whole book of night nurses that we could probably write about how crazy their lives were. But the ones that were great, they stuck with us for a very long time. Um, I mean, it’s just really crazy how some of these people, you know, got into being LPN’s and RNs and, you know, some of like one of them didn’t believe in pre-drawn meds and yeah, I could go on into I could go on into all those types of details and that also insurance. Uh there was a time guys where my where my brother uh who was who was going to school every day. They pulled his nurse aside and the supervisor that was there said that he can’t have a nurse to go to school with him. He can’t have like a nurse to go to school with him and be there to take care of him. And so he was out of school for probably I would say a mom. Correct me if I’m wrong here. For seven months, like six to seven months. And we had to fight. We had to fight for that. And he would he, you know, like he couldn’t just not go to school without a nurse. And even if there was, you know, like an aid there or whatnot, they didn’t know who he was. They didn’t know about his condition. they didn’t know what to feed him, like what to take care of or how to take care of him and all that type of stuff. So, there was a lot of times where even like when the the blessings were there, there were a lot of things that that happened too that were just not fun at all. Um, and it was really frustrating. Very frustrating. So, you know, you don’t really think about those things. Um, sometimes even just getting him into doctor’s appointments would take months uh because insurance didn’t want to cover it or or or just whatnot, you know. So, all right, I’m going to be looking at chat again. I apologize. I just wanted to I just wanted to get into all those types of things. Uh, oh my gosh, what? THR30 step with a $500 super chat. $500. What? Oh my gosh. $500. $500. Wow. Oh my gosh. You guys are insane. $500. Oh my gosh. $500. Got to head back to work. Peace everyone. Oh my gosh. 500. Are you kidding me? That’s unbelievable. Oh my gosh. That’s insane. Wow. So, right now that means that we’ve pretty much raised over 650 620 on YouTube and 57165 over on the website itself. And you double that, that’s over a thousand, guys. We’re almost at We’re like over $1,500. Oh my gosh. $500. That’s insane. I can’t even process that. Can’t even process that. Oh man. Uh JJ, you had serious caretaken responsibilities from an early age. I got to think that that has greatly influenced who you are today. Thank you. I I try to give people second chances, I always try to uh you know, even if I was running late to class, would always hold the door open for somebody. Um because god forbid if that was my brother and the door was slammed on on him or like the nurses or whatever, I wanted to wanted to just do that for other people because you never knew like what people were going through. Um you know, I was always I I could always tell too like I I was really nice. I I like going I liked going up to people and talking to them one on- one even when I saw that they weren’t feeling well. Um, you know, I I do try I do try to be caring. Wow, $500. That’s insane. Thank you so so much. Justin, I love you too, man. Snowman, say too. Everyone is coming on here to support your you and this cause. Wow. Oh my gosh. Cello all. Hey JJ, I love your effort and donated accordingly. LP, thank you. Thank you. Thank you so much. I also appreciate the stories you’ve shared this far. Mitchell would have been so proud. Peace and continued blessings. Thank you guys. Don’t mind me. [Laughter] Wow. Oh my gosh, I miss Mitchell. I did too. He did. Absolutely he did. Oh man. Um several months seemed longer when it came to him not being in school. That was not fun. Um, yeah, a lot of caretaking responsibilities. We also, by the way, just to add on top of to, you know, everything else, we had a dog who had Parvo. Um, and she had we rescued her. She was her name was Mocha. You’ll actually see her in the video, too. She was still alive then. Um, but she we always had to tell the nurses, you know, not to go up and touch her and people that would come on over to the house because she would bite out of fear. But again, so many other people like would have put her down. Um, so many other people like would have just, you know, let her go. Um, but she I think that we definitely I’m I’m my whole family. I feel like that we did the right thing giving her the best quality of life. But I bring her up because she did bite Mitchell too. Um, you know, Mitchell wouldn’t feel anything and he wouldn’t know better. He would actually what he would do is he would try to scare the dog if the if the dog was on the couch. Uh, you know, he he did that to me too. Like when I was younger, of course, like he he had to show, you know, the younger brother of course who the bigger brother was. Okay. That’s just who he was. So if I was on the couch or whatever, like he, you know, and I was I was sleeping like right next to him, he’d shove the DVD player, like he would he would come up and like he would scream at me. Uh sometimes he would actually chase me around. Um but you know, he didn’t know better, but he always liked to show uh he liked to show off and he loved attention. Loved attention. Um, every Friday night we would have dinner at the at the table and we would do Shabbat, which is uh what we celebrate in Judaism. And Mitchell couldn’t eat uh he could not eat by mouth, but he was always there at the table with us and we always tried to include him in everything that we did and it was just so nice. He would say amen. And you know when it was time to say amen and my dad actually would like give him he he couldn’t eat the bread but like he would hold the bread and he would put his mouth right over to the bread and then as soon as the service was done, take off the yarmaka, go back on over to the couch, take off the clothes, and then just go back to watching his movies. Um, but yeah. So, oh my gosh. Um, $500, man. I I can’t even process that. Thank you so so much. Uh, wow. Zoe THR. Uh, thank you so much for that. That’s beyond generous, man. That’s insane. Uh again, I I I will find a way to reach out to all of you who have donated and try to thank you personally because you deserve that at the very very least. For sure. Laughing and crying at the same time doesn’t happen. It’s a beautiful thing, says Larry. It definitely is. Don’t cry, have faith. We are coming by to support you and your family for remembering your brother. Thank you. Thank you guys. Thank you very much. Um in about like 25 minutes or so I will uh play the documentary that I did on him. So that way because again like this is all just talk. Uh you don’t you you haven’t really seen him. I mean, I did show you pictures of him, but you know, just to be able to see it for yourself is is a big thing. I I honestly wanted to make this documentary, too. Uh, part of the reason why I really did want to do it, again, I I I had a documentary that I had to do for my TV media class when I was a senior in high school. Um, and I thought, well, my gosh, this just hits home and I have everything right here. And what a way to wrap up senior year and have this be your final project. Uh but I also I a wanted to do it because I thought that it would be like the right assignment to do and it would be easy for me because all I had to do was just present his story. I also thought that it would get more eyeballs on him as well. Um, but also I did it because we had different nurses that would come on over to the house and they would learn about how to like pre-draw, you know, how to take care of him, like how to how to make the meds, how to make the feeds and combine everything, but they didn’t really and and and they would look at him and they would watch him like watching his movies and whatnot, but they didn’t really get like a full I I thought that giving a video would give them more of a fuller sense of what they’re dealing with. And that was like sort of like the final line of like, all right, like I want to work here or like I can’t do it. And I really thought that the documentary really encapsulated all of that because to me sometimes like when we had the nurses and we’re going through trials and errors of figuring out who’s the best fit and all that type of stuff, you want to try to get the best fit and you want to know who’s good and and and who the right pieces are and who would be a good match for Mitchell. So I thought that that was a very good determining factor in that. But also, and I knew this as And the third reason why I did it was because as time goes on, guys, I I I I put myself through it last night, and of course I did shed tears, of course, even worse than this. I do think I’m put doing as good of a job as I can holding it together. But as time goes on and like you watch the final couple of minutes of the pictures and you look back at like him and the way that he walked and the activities that he did and the way things were. It it makes you remember, you know, visual a picture speaks a thousand words. A picture says a thousand words, but a video says a million. And I thought that it would be such a great idea just to do a documentary on him and that’s why I did it. Uh that’s another main reason why I did it because as time does go on and I knew at some point he was going to pass away but I wanted something out there just to remember him by you know and have him have some sort of visual uh legacy as well. So, cuz he deserved that. If anybody deserved it, he did. He definitely deserved that 1,000%. So, uh what else do we have? Uh if you guys want to if you guys have anything else that you guys want to say, uh please comment down below. And again, I will get off in about 10 minutes or so. Um, yeah, love sports as I mentioned before, like loved football, loved baseball. We never took him to a football game, but we did take him to a couple of minor league games. Uh, we took him, of course, to the Phillies games as well, which was really awesome. Sat in the Hall of Fame Club. I said that we uh got to see the Philly Fanatic and the Philly Fanatic would come up and say hi to him and he would hug him and he he loved that. Um wow guys on the website we’ve got $685. Wow. $685. Wow. Insane. Cheers. So, I do hope that all this stuff was valuable. He loved his blankie. Loved his blanket. He had a blanket that had cows on it. He would grind his teeth. He couldn’t eat by mouth. So, that was just something that a lot of people that have FD do. Um, and he did that and we had to tell him no teeth because you can’t do that. But yeah, God. Um, here’s a really cool thing about the history of uh of FD. I will actually put this up right now. Again, this is all this information right here is on the website. Um, and you can go check it out. I will post the link to it right now. This is actually just the link of the history of FD right here. Uh and so I will post that right now. So in 1951, the disenomia foundation was founded by parents of children with FD shortly after the disorder was first identified in the US again uh by Dr. Riley and Dr. Day. In 1969, the treatment center was established at NYU under Dr. Felicia Axelrod that she treated pretty much every single uh patient with FD including my brother and she was so good to us. We had an awesome experience with her just to say the least. Uh the dysotonomia center in Israel was created in 1980 at the Hadasa hospital uh in Mount Scopus in Jerusalem. Uh that was under Dr. Cha uh Mayan, I hope I said that correctly. If I if I didn’t, I really do apologize. They had the first FD day back in 1985. It was held to bring together families and caregivers for a day of learning and connecting. And what was also really cool about FD day when they had it in person was that they would have like a breakfast um with everybody, you know, at the parents, the siblings, and uh the patients themselves. and everybody got together and we would talk and we would uh you know catch up with with with people and uh see how things were going. But then what they would do is after breakfast they had like bagels and locks and different types of stuff uh they they would then have the patients go upstairs and um and the kids go upstairs and they would work on like different arts and crafts and they would socialize together. which was always a really nice thing. Mitchell, of course, was, you know, watching this DVD player, but he would show it off to other people and other people would come up to him and ask him like what he was watching on this DVD. Of course, the nurse would be upstairs or my mom would be upstairs, too. And then my dad for the most part would would go with the would go with the adults and they would talk about all the research that’s been done over the last year and all the milestones that they’ve been able to accomplish and that type of stuff. Um, so and and then afterwards they would have brunches and they would get all the different doctors and all the different representatives that were there to go from station to station and talk I believe for like 25 to 30 minutes or so just to give their expertise and talk about what types of science was being done, what type of uh uh medical tests and whatnot were being uh facilitated and those types of things. So that was really it was always really intriguing to me and especially as I got older. I’ve always been really fascinated in learning more about the gene, learning more about the disorder itself and what new research has been done. So that was something I wanted to add. In 2001, scientists discovered that the FD gene mutation was the IAP within chromosome 9q, ushering in a new era of population screening and uh prenatal diagnosis. Uh that was that was a big year for them. Uh in 2007, Dr. Kaufman, a professor of neurology, he saw my brother too, uh joined the cent’s team as the head of the new uh dotenomia research laboratory. Um, they did construction back in 2008. Again, like there’s so much valuable information on here. Um, I didn’t I didn’t uh what was I going to say? Uh, the Sen the Dotia Center expanded eye research adding a state of the art laboratory back in 2013 to examine the the inner facial of the eye and the visual function. Um, yeah, I’m trying to think. What? Uh, oh my gosh, Mitchell had keraticonus. Um, mom, just to put you on the spot here, can you explain to the chat what keraticonus is? I can’t really like right now I’m sort of my brain is starting to get a little bit foggy. Uh, but can you can you explain what keraticonus is in the chat if you are still tuning on in? Uh thank you very much. Uh but yes, that was uh he had ter keraticonus. Uh but yeah, it’s all really uh wild stuff, but yeah, you can learn more. You can learn again, you can do the research yourself. We I think we spent a good amount of time talking about it. Uh, and I’m really happy that we were able to do that. Uh, I’m willing to take any questions in the chat right now. Let’s stop the screen share. Uh, if you guys have any questions for the next couple of minutes, please feel free to ask down below. Um, I also wanted to thank uh Dr. Solomon. Man, Dr. Solomon, thank you so much. Um, uh, Lawrence Pearson, thank you so much, uh, for your donation. Paul, thank you for the donation. Deb, oh my gosh, thank you so much. Uh, Claire, thank you. Uh, really, thank you all very, very much. It means the world to me that you guys are here to support everything that we’re doing today. Uh, what else do we have? What’s up, David? What’s going on, man? How are you? I’m watching from School of Jesus Philly Sports. Don’t get yourself in trouble, man. That’s all that I ask. Don’t Don’t get yourself in trouble. Again, as the day does continue to go on, I’ll continue to of course show things that Mitchell had that he really liked, like toys, um, and that type of stuff. You know, the last song that I sang to him when he was uh when he was in that hospital was You’ll Be In My Heart. That was really cool. Thought that was really powerful and I tell that he heard every single lyric to that. So, I had to be here to support you, man. Thank you. Thank you very much. It’s a good support system. Yeah. Very, very lucky. Very fortunate even with all the the curses that happened. Um, you know, my dad put it I think my dad put it the best. He would say that there were always curses, but there were definitely blessings that came out of this, too. And no matter what what what hassles we had to go through, whether it was my mom spending time like hours and hours on the phone with insurance companies just trying to supplied with oxygen tanks and make sure that that was covered. Um or even just a feeding tube, just a regular feeding tube. the insurance companies would say, “Well, we’re not going to insure the feeding tubes anymore because he’s doing really well, so we’re going to try to just take him. We’re not going to be covering the feeding tubes.” Even just those small victories were were big wins. They were huge wins. Like, you guys have no idea. Just to be able to get a certain medicine covered was a big win. Or or even just syringes. like my gosh, syringes. Sometimes they would say, “We’re not going to cover you uh because we don’t think that he needs the syringes.” And it’s just like, “What are you talking about?” Like, he needs it to survive. Come on over to the house, see it for yourself. We all We invited them. And did they ever come? No. Nine times out of ten a lot of them didn’t come. Oh, Cara Takonis was someone else uh who we love who has that. Okay, I apologize again. Thanks for uh explaining that he did not have keratonus. Thanks. Uh Mitch says I’m at the gym now tuning in. uh future is to say things that uh they had said and tell their stories. Be sure to keep your fresh memories captured somewhere. You can’t always rely on the brain. Nope, you can’t. Uh pictures, audio clips. Um, even on his tombstone, my mom made sure that on the very back of that tombstone that we had all the metalisms out there of stuff that he would say and how he would say it, all the quotes like Mayi me, my mom, you’re back, you every little thing that he accomplished, whether it was learning how to turn on a DVD player, whether it was trying to get the TV movie, the the the movie that was on the TV in sync with his DVD player. Those were milestones for him. They really were. getting him on on a bike. Uh it wasn’t like a regular, you know, like a regular bike, but getting him getting him out of the wheelchair, getting him out of the house, getting him up to go see Batman if Batman was here or like at one time there was a Spider-Man over at Toys R Us and we took him over there to see him, just to get him up and just to go say hi to Spider-Man and get to go say hi to all the Disney characters. Those were all I don’t it doesn’t matter how you look at it you know as if it was something small but it was always something big you know sometimes even trying to figure out what he was saying that was a big deal too you know uh how would he say I don’t know I can’t really think right now but like big bird I think he said like Big Bud, you know, and just trying to figure out who that was. What was he trying to say? Like once we figured it out, it was always great, you know? It’s like trying to dig, you know, dig something out and that was also really nice. I’ll say many times during your fundraiser that your heart is appreciated and your wickets are bigger than JT. Thank you, man. Josh, thanks so much, man. Hello. Good morning. I was absolutely h last night. I’m uh go Cubs go. Eye problems were coral abrasions as a result of dry eye. Yes, I talked about that for sure. I did. We’re watching from Colorado. Claire, that’s me. Claire. Oh. Oh, thank you so much, Sema. Thank you so much, Sema. Wow. Thank you very very much. H but yes. Okay. H mom, how did I do? Be honest with me. If there was anything else that I missed, please correct me if I’m wrong. Uh, please please fill in other things. If you guys want to donate again, it’s right here. Scott just posted it. Mods, you guys are the best. Oh, you guys are so awesome. You really are. So, in total right now, guys, we have raised $685 on the website. 685 on the website. And we have gotten I believe 625 just here on YouTube. Again, the five the Jack Jack with the 50, excuse me, like thank you very very much here on YouTube. Um everybody that donated on the website, Dr. Solomon, uh Lawrence, uh Sema Fox, uh Deb, uh Kairen, I hope I said that correctly. Uh uh Judy, Jack, um uh who else? Uh Jamie, Mark, Travis, uh Tom, David, and everybody else that donated. Faith as well, uh Dr. Fran, thank you. And to those people that also donated last week on YouTube, too. Thank you all so so much. Uh, we’re continuing to go and again, this is going to continue to go on into tomorrow as well. And of course, how could I forget about our $500 super chat, too? That’s just absolutely wild. Uh, from THR 33. You guys have big hearts and it means a lot to me. So, I love you guys, too. Uh, did I scroll down? Mom says, “I’m doing great.” That means that that’s that’s a good thing. Remember remember how he’d get frustrated when someone didn’t understand what he was saying? He’d yell, “Mom, my Oh my gosh. It also makes me think sometimes too when we were at the dinner table, right, we could be eating. My mom could be asking me a question. She could be asking me, “Jason, did you take the dog out?” Mitchell would yell in the other room, “No, wasn’t talking to you, Mitchell.” I know. Oh man. Um, you need to put your goal up with the money that you want. I did. It’s in the poll question, man. Um, yes. LP, I heard my name, too, but it could have been another Claire, too. No, it was it was it was you. I believe that it was you. I’m pretty sure it was you. One sec, Claire. Why am I not seeing this right now? It was definitely you. What? What the heck was that at the bottom? Uh, one more. I missed the last one. Claire Martin Alan Cla Martin Anderson. Yeah, that’s why I said Sema. So, yeah, it was definitely you, JJ. I may have missed this, but what was Mitchell’s birthday? How old was he when he passed? Did he have a favorite team? Yes. So, he was a Packers fan. Uh he he loved the Packers, and of course, he loved the Philly Fanatic. He likes watching the Phillies play as well. Um uh but his birthday uh was October 9th. Uh he passed. He would have been 30 in 2020. Um, so that he was he was 29. He was 29 when he passed. It was September 1st of 2020. Um, but yeah, good questions. Your impression of Mitchell is perfect. Thanks. Thanks. Shout out to Max. What’s up, Max? Thanks so much for coming on here. I really appreciate it. Uh, so again, we’ve raised over and again, like we’ve only been doing this for like a couple of hours, we’ve raised over $1,000. Like well over a,000. We’ve we’ve gotten to $1,500. And again, everything that was donated via the website, which the last time I got updated was 685, that is being multiplied by two uh because the foundation is doubling that. That is $1,350. It’s pretty incredible. So, essentially, we’ve gotten over 2,000. We got to keep going, man. Um, keep going. Keep spreading that word. Uh, and, uh, we’ll keep honoring, uh, Mitchell as we continue to go. All right. Um I am going to I did say that I have a documentary that I did of course um which is really awesome and I am going to play that and I also have a uh interview that I did with the uh with the director of the foundation uh her name is Landy. She’s absolutely awesome. Um, you gotta bear with me for one second to make sure that I have the right thing up. Um, oh, I got to pull up OBS first, right? Do I have to pull up OBS first? How was I doing this? How was I doing this? Yes, it was through OBS. So, let me pull up OBS really quickly. Say yes to this. Okay. and we will get that up and running. Okay, it’ll be like about an hour, eight minutes and then we’re going to get on into Diamond Zone. So, we’ll talk about the baseball matchups for today. We got baseball for 12 hours and we’re going to again continue to honor Mitchell and continue to raise more money for the the foundation. Uh, so and we’ll continue to talk about him as we continue to go on. All right. So, now that I’ve gotten to talk a little bit about Mitchell, well, I think you guys should go see him. I do. And you should hear from not only just me, but from other people that were really involved with his life. Enjoy. Out of all superheroes, everyone has their favorite. Some people say it’s the Flash. Others say it’s Wonder Woman, Superman, or the Hulk. But there’s no dispute for Mitchell Joseph. It’s definitely Batman. It loves the Batman movie. alltime favorite is Batman. Batman. He loves Batman. Started out as Batman and still is Batman today. If Batman is ever coming to the JCC or any other place that’s local, we’ll get Mitchell outside of the house and we’ll have him go interact with Batman because he loves Batman. Mitchell Joseph, who’s 25 years old, is a huge Batman fan. He has an enormous array of Batman movies, collectible items, and clothes. Batman gives Mitchell an ability to live a full life of adventure and excitement. What many people don’t know is that Mitchell was born with a Jewish genetic disease called familial dysotenomia or FD. familiar which is genetic through the family and dysotenomia is the dysfunction of the autonomic and sensory nervous systems. This means that he cannot feel temperature or pain in his body. Mitchell’s disorder has many symptoms including scoliosis, unstable blood pressure, and the inability to produce tears. He has a DVD player and he scrapes his hands on it a lot and that’s kind of when he’s excited or when he’s watching it continuously and he just he rubs his knuckles on it and they get red. Sometimes he’ll bang them and he gets like sores on his hands. You know Mitchell can bang his hand. Uh one time he got it caught in the in the door the sliding door of the van inadvertently and uh he didn’t know anything happened really other than his hand was stuck. we find way to uh to catch the signals that his body send out to us. Like for example, when he’s cold, you can see like what we call a goose bone and he’s shivering. That’s a that’s a sign that he’s he’s cold. When Mitchell wakes up, his body needs to adjust from sleep to wake mode. Because his vital signs are not regulated, he often goes into a state called crisis. This causes him to have many episodes of wretching, sneezing, high blood pressure, and heart rate. He can wretch almost like he needs to throw up, but he can’t. He he can’t throw up. He had a thing called a thundipification, which uh sews the top of the stomach. So, he can’t throw up. We have to vent anything that’s there in order to bring it out. He can wretch, but he can’t throw up. You really have to watch Mitchell and make sure that he doesn’t doesn’t aspirate or have an accident. And it can be very scary at times when he gets sick or or when he goes into crisis. because when something goes wrong, everyone shifts in, someone gets the oxygen, someone goes and helps him. And uh it’s a whole effort by everyone. Finding out that Mitchell had FD was really devastating. It was very difficult. And the last thing I expected was to have a baby that wasn’t healthy. And it was really difficult cuz we were very scared, not knowing what was going to be for his future. We had to learn what to do, what to deal with, what it really meant, how do we take care of them, all those things uh went through our heads, right? Since Mitchell cannot swallow food from his mouth, he uses a feeding tube. Next to Mitchell’s belly button, he has another button that is used for medication, hydration, and nutrition. That’s right. His feeds is a puree and a formula. They’re to like give him nutrients and to keep his body fed. All he gets medications. He gets a lot of respiratory medications which includes his inhale his inhalers and his neck treatments. He get uh one of that calloba. So that help him with his blood pressure. He gets formula that the doctor has prescribed called complete pediatric. He also gets Pedialyte and water. But we also mom has always wanted him to eat food that his brother and sister eats as well. So when I make the feeds, there’s scrambled eggs, there’s peaches, sweet potatoes, carrots, avocados, peanut butter, and this powder called Scand which adds a lot of calories to the food. In order to get to know him better, let’s take a look at a day in the life of Mitchell. Around 6:30 a.m., Mitchell usually wakes up with the help of either his mom or one of his nurses. Together, they walk downstairs. Then his morning routine begins with respiratory treatments including a nebulizer medication, a copilator and vest treatment. We start with breathing treatments and nebulizers and then he has the vest treatment and then he has a cough. All of these things help with trying to clear his system so that he doesn’t aspirate into his lungs. The vest that we put on, it’s called an ABI vest. It um it shakes his chest. We used to be able to do we used to do chest compressions where we used to go like this. It’s called cupping on his back to loosen um secretions that are in his lungs. One is to shake everything off basically so that when he when you go to do the cough later he can cough and if he has any secretions he can bring them up. He wears what’s called a BPAP and it’s a breathing machine that gives him oxygen if he needs it uh just to keep his oxygen level up. A lot of times at night some people will either um skip a breath, not necessarily Mitchell, but their just breathing becomes more shallow when you sleep and in order to keep his oxygenation at a certain level that we put that on him at night. Once Mitchell is up to date with his medicine and treatments, it’s time to pack up and go to his 21 plus program. During the weekdays, Mitchell attends this program at Hollale High School in Washington Township. Mitchell’s mom and nurse help him get to the car safely. He loves to travel, singing along with his favorite tunes. Mitchell’s mom meets up with the bus driver at a designated bus stop who takes Mitchell and his nurse to the daily program. when he doesn’t want to work, he does nothing. But usually you can persuade him. He will um work on puzzles, matching shapes, matching patterns. He counts money. Activity wise, he is now starting to ride a bike. It’s a um special specialized bike where he can steer, but in the back there’s a handle that you can help him steer. At his program, Mitchell interacts with other students and teachers. He has developed a great support of friends. When they take attendance, Mitchell takes attendance. He has to point to everybody. So, he he knows everybody’s name. He finds it hard to make friends, but he he’s very compassionate to other kids that are in wheelchairs. It’s strange. He knows that they need more help than he does at times because he’s not wheelchair bound as much. So, he also likes to help uh people that are in wheelchairs. He likes help pushing them. He likes uh touching their hands and asking them if they’re okay. So, he has his own way of having friendships. Okay. Coming home from his program, it’s time for his afternoon routine. Oh, he once again gets respiratory treatments. So Mitchell loves the villains like to every Disney movie and even to some other movies that he watches. Like he loves the Joker. He loves the Penguin all from Batman. He loves all the Batman villains. Uh, he loves he loves Shir Khan from the Jungle Book, Scar from the Lion King, Ursula from The Little Mermaid, Tumbolina. So, he loved that. And he watched um Spongebob also. He loves Disney. He really loves villains and uh other like things that aren’t Disney. So, like those sort of or should be bang bang. when you speak the lines to him, you develop a bond that’s like I don’t want to say it’s unreal, but it’s just it’s an interaction with Mitchell that you can’t have with any other person. Definitely participating in his world and in those films. Uh Mitchell loves that. So he loves when everyone sings his songs and uh really creates that like community with him. You always get a hello, a smile. He’s always happy singing. He likes to be read to at night, which I do. It’s just amazing how happy this child is. Mitchell has overcome many obstacles and has become a superhero himself. Every day he battles with FD and wins. Mitchell has taught me to enjoy each day and to make the most of whatever you have. And I try to have fun. It’s hard to be a caretaker and a mom. That’s one of the most difficult things that goes with this for me. It’s hard to just step back and be a mom because there’s so many things that I have to look out for for his wellbeing. Mitchell’s special because he has an infectious sense of humor and a laugh that uh you look at him and he if he’s feeling good, he’s he’s almost always in good spirits. Even though he’s sick a lot, he still like finds things in life to be happy about and sing and he has compassion and wants the people around him to be happy and like share that with him. What makes him unique? He’s Mitchell. Mitchell is well, first he’s taught me patience. Mitchell has a good soul. There’s nothing bad in Mitchell. He hasn’t been influenced by the world. We need to take a lesson on that. He’s helped me realize that these kids are special, but even though they are special, have special needs, they need to be treated like a normal child. They do something wrong, yes, they need to be corrected. But there are certain ways and to do this. But with Mitchell, you just have to say certain things and he follows through. no matter how stressed I am sometimes or if I’m in a really bad mood, he’s always taught me how to look at the bright side of things. And he’s also taught me how to how to interact with other special needs kids and make an impact in their life. Advocating for Mitchell means that I am fighting for his rights because Mitchell can’t really speak for himself and he deserves a quality of life that is as good as everyone else’s and he needs certain supplies and he needs to go to certain doctors and he needs um different kinds of appointments and all of those things need to be done. A lot of times it’s a fight for the insurance company because they don’t want to provide you with the best health care. They just want to give you the minimum services that they do. So I speak up and I don’t like to quit and I don’t like to lose. So I keep fighting finding a way. [Music] Who is that? Taking a short video. Batman. [Applause] Who is that? Come on. So, how many times can we catch you today? When are you out? Shake his hand. So, that means 24. [Music] Happy birthday to you. Happy birthday to you. Happy birthday dear M. Happy birthday dear. [Music] anymore. How many years? Two. One. Okay. Keep going. Yay. [Music] Oat. [Music] I really hope that you guys learned a lot about my brother Mitchell in that video. Um, I miss him very, very dearly. And just from watching that video that I did back in 2016, it brought me back a lot of memories, of course. And it was actually kind of interesting to visit memory lane for sure. And there’s things that obviously you don’t forget, but there’s other things that you’re just like, “Wow, I kind of forgot about that.” And uh yeah, so up next I got an interview with uh Laney who is the executive director of the familiar datonomia foundation. I do hope that you guys enjoy that and that you learn something about that too. We discuss a little bit more in depth with uh things that are going on with the with the dysotenomia foundation and less just about uh the disorder itself of FD. But I do hope that you guys learn a lot from this, too. And let me know what you guys think down below. Hi everyone. Today we have a very special guest. She’s been the director of the dysotenomia foundation for the past eight years leading the way in raising awareness supporting families and advancing research for uh familial dysotenomia. We are so honored to have her join us during this fundraising stream. Uh Laney, thank you so much for your time and thank you so much for joining us. Well, thank you for inviting me, Jason. I’m happy to be here. Now, um, can you tell can you tell the audience about about the special offer that that someone has offered to double down on on the donations? Yeah, it’s it’s a really exciting time for the foundation. Uh, we h um are launching a fall fundraising campaign and uh we um are hoping to raise $260,000 alto together, not just for you, don’t worry. Um but but um we have raised um um over $120,000 in challenge funds so that every dollar that’s raised is matched with another dollar. So anyone who donates a dollar um each dollar will be matched by our challenge um donors. So it’s it’s it’s really exciting because it really doubles the value of every gift that’s made during this c during your campaign. Um, so we’re really excited about that. That’s really exciting. I mean, that’s uh that’s that’s actually just super awesome. And uh you know, I talked to you on the I talked to you over the phone and I was when when when you first told me that, I was so excited to hear about that. Well, you know, people are really inspired by that. Um, I mean we have we have we’ve been doing this for I think the when I first started eight years ago was the first year that we launched this kind of a campaign but now people have really come to look for it and uh we have people that reach out to us and say is my gift going to be matched and um they really want to give at this time of year when they know it’s going to be matched because it just amplifies the impact of their gift. So wow that’s that’s so awesome. That’s absolutely incredible. Um, so I wanted to ask you, uh, first and foremost, how did you get involved with the foundation? Well, it’s it’s an interesting story. Um, I mean, I have been in the nonprofit world all of my career. Um, um, mostly as specifically as a fundraiser. Um, this is my first role as an executive director. Um, I just was kind of ready for something a little bit different after many, many years in fundraising. But of course, um, you know, this is a foundation whose prime mission is to raise funds and raise awareness. So, I’m still wearing my fundraising hat a lot of the time. Um but it’s, you know, it’s it’s adding on just a whole another layer of um you know, really interesting responsibility to get involved with this foundation at the executive director level. um because not only am I fundraising, but I’m also, you know, working with the board of directors to help um direct the the priorities of the foundation and determine the direction that the foundation will go. Um I’m working with the scientists and the scientific advisory board to help support their work. I’m working with the families like you and I are are you know are working together today and um you know just all the other details about managing uh the operations of of the foundation. So um so this is the first time for me in that role. Um but um you know a lot of people ask me if I have a family member who has FD and I don’t but um when I was contacted about this role totally coincidentally because as you know uh this is an ultra rare disease there are only about 300 people living with familial dysinomia in the world today and a rare disease is considered if 20,000 20,000 people have this dis have a disease. So 300 is a pretty small number. Um but I actually uh know someone very close to me who has FD. Um I knew him when he was born and I remember when he was diagnosed and he just turned 19. Um, so he’s my one of my best friend’s nephews and um, so I did, you know, I had heard of FD. You know, a lot of people have never even heard of it when we talk about it. I’m sure you have that same experience. Um, and that’s why it’s so great that you’re doing this um, fundraising stream because I’m sure a lot of people who follow you um, because of your sports expertise um, don’t have never heard of familial dysomia and probably can’t pronounce it. But, um, this is, you know, this is what this is what we’re doing. We we want to raise awareness. We want people to know that it exists. We want people to know what it is. and we want people to help support uh the work that we’re doing. And I and I think it’s also important for people who may may want to um send in a donation today to know that and we you know I’m sure we’ll talk a little bit more about the research. Um but it’s important to know that a lot of the research that we’re doing because you know a lot of people say well 300 people you know why would I want to support that? But a lot of the research that we’re doing because it’s a neurological disorder um and because we’ve identified the gene for FD and that happened in 2000 and we can talk about that more too if you want to but um a lot of the neurological disorders that are more common like Parkinson’s and multiple scerosis and um Lou Garri’s disease and um they you know they’ve not necessarily identified the gene. So, a lot of the research that we’ve that we are doing can be um can help the research for some of the more common neurological diseases. So, it’s important for people to know that they’re not just helping people with FD, but they’re helping us learn more about neurological disorders that can be applied to other um other other people and where where millions of people are affected. I want to piggyback a little bit about, you know, you talked about how how you’re working directly with the families. What’s been like the most rewarding uh part about that? And not just with the families, but also just directly with the patients. H well, I mean, I could take I could take your family as a perfect example. I love your your parents. They they are they are great. I mean the relationships that I have built um through you know working with families through through a variety of opportunities you know we have photo sessions and we have fundraising events and we have you know all different kinds of ways that I’ve gotten to meet families and work with families and work with people who are impacted with directly with the disorder. We’ve had volunteers come into our office, people who have FD. Um it I it you know it’s really enriched my life. I have to say the relationships that I have built. Um our board um is almost almost everyone who who serves on our board um has has or had a loved one who had FD. And you know people are just tremendously committed to the work that we’re doing. And it’s really um it’s really heartwarming to see the level of commitment that people have as volunteers, as board members, as fundraisers to to the work that we’re doing. You know, when when you were talking to me, I was I was just I was just thinking about, you know, one of my favorite events that that uh that we did was we had the there was a walk-athon back in Abington. I I believe it was like 12 or 13 years ago. Uh but I just remember obviously seeing all the families there and seeing everybody walk and how many people were just there for that event. Um and that was really cool. There was also um a concert I believe that the Counting Crows were performing um you know years even before that. And I just I just love everything that the that the foundation has done and obviously gotten close to the families and everybody else that’s been a part of this and it’s just it’s just an awesome community. It just it just sort of brought back memories, you know, when you were talking about that and I it puts a big smile on my face. Yeah. Yeah. I mean, you know, they they say that it’s a club that, you know, nobody wants to belong to because obviously it’s a devastating disorder, but but you als you also know that everybody calls each other’s cousins because you you know, everyone who’s impacted by the disorder has the same um defect and meaning that you’re all everyone’s related. I mean, you know, everybody came from the same um stuttles in Europe and and you know, if you go back far enough, everybody came from one ancestor. So, they all call each other cousins and it’s really, you know, it’s rather heartwarming because everybody supports each other. there’s there’s a parents chat group and um you know they’re all you know sometimes they’re venting because something horrible is going on in their lives and you know sometimes they’re celebrating a a triumph you know and uh either way they’re there for each other and um and I’m sure you know I’m sure you went through that. I mean, you had a tragic loss, unfortunately, and I’m sure you felt the love and the support of the community because that’s just who they are. They’re there for you in the good times and the bad times. I’ve I’ve seen it. So, Y, absolutely. Yeah. I know that my parents are still highly involved with that, too. And it’s just it’s something that’s just never going to be lost or forgotten about. And it’s Yeah. Yeah, it’s awesome to have that support. I I did want to ask too, you know, you talked about how you work with the uh with the scientists and with the research department. Um, what types of research have come out over the last couple of years that have been really intriguing to you? Well, I have to tell you, I was never a science. I barely I barely made it through science in high school, but now I have learned so much about uh gene therapy and uh genetic disorders. Uh so I’ve I’ve I’ve really learned a lot. I mean, I’ve sat through, you know, we have we have brilliant scientists from all over the world who are studying FD um in Israel and in France and all over the United States. And um we have a scientific advisory board of people who are very very committed and you know I sit in on these meetings. I organize these meetings and you know I absorb a little bit um and try you know try to understand um what they’re what they’re working on so that I can you know write a grant proposal or explain to other people what’s going on. So basically um what what what the scientists are focusing on now is to repair the genetic defect that causes all the damage in FD. And if they can repair the genetic defect, they can I mean you you know it happens whereas like some people some diseases develop over time, right? Like you you you maybe have a cancer that doesn’t hit you until you’re 40 or 50 or 60 or whatever. But this this disease really develops in uterero, right? It’s a it’s a it’s a genetic defect that you’re born with. You know, babies are born and they’re they show the signs right away. they can’t suck and they can’t swallow and you know all those kinds of things. So, and it just gets worse from there. Um but if they can repair the gene where and wherever that person is in the trajectory of you know of the disorder, they can at least prevent the damage that continues in the in the um trajectory of of the disease because it gets worse as people get older. And I’m sure you probably saw that in your brother. Yeah. So that’s what they’re focusing on. They’re focusing on on repairing the gene. And right now they’re coming at it from three different angles. Um so one is a um a small molecule and that is a pill that um is being studied at Harvard. Wow. And um Sue Sluggenhoff who actually discovered the gene in 2000 is the one who is studying that and it’s getting it’s getting very close to she has you know funding from the NIH and um she’s getting very close to that being ready for a clinical trial. they’re studying it in animals to make sure that it’s, you know, it’s safe for people and um so that would just be a pill that somebody would take and that’s, you know, that’s great because it doesn’t, you know, it it’s not invasive and that sort of thing. Um the second approach that there that um was being worked on at the University of Montana by um Dr. Francis Lecourt who is now co-chairing our scientific advisory board. she is retired and she has passed her um FD mice. They bred mice to have FD that they could study um is called gene therapy and that is um a an an in an injection um to fix the gene and they’re working on the retina to improve vision. Um, and that is also getting very close to being ready to go into the clinic. In other words, being ready to go into human and they’re working on the animal the toxicity and all that that sort of thing. The third thing, the third way that we’re approaching this is called an anti-sense aloneucleotide. And that is actually we started clinical trials last year and that is a systemic treatment that um so it’s being um injected into the spine and the clinical trials are happening at NYU where we have our worldclass treatment center and that’s that um has been in existence for 50 years that is funded by this foundation and that gifts you know will continue to fund. Um and um that technique was perfected at Cold Spring Harbor Labs on Long Island in New York and has um been very successful in other disorders and now they’re trying it with FD and um the first patient has um undergone one year of treatment and has shown considerable improvement and the second patient has started treatment uh this summer and uh based on very positive um results it is very likely that more people will participate in that study. So that’s really exciting. So those are the three um genealtering therapies that will hopefully um prevent further um damage and potentially even reverse some of the damaging effects of the disorder. So that’s like one area of the research. There’s another study that’s going on. Do you want me to keep talking? Oh, no, no, no, no, no, no, no, no, no. Keep going. Keep going. I was just I was just I was just saying to myself like that’s like really interesting because I’m thinking about I’m thinking about Mitchell and I’m thinking about you know obviously it was hard for him to produce tears and and and I’m thinking about his vision and uh you know I I think that not to get off on a tangent but I I think I personally believe that I think that his favorite color was green because he could see it you know and I’m just I’m just thinking about all that stuff and um I’m like really fascinated about. Yeah. No, it’s it’s it’s I I don’t know. Did you watch FDday this year at all? I did not I did not get to watch FD. I mean, if you have any interest, I mean, the all the scientists I mean, I’m as I said, I’m not a scientist. I have a very basic understanding of all of this. But if you want to learn more, we had scientists, the the actual scientists who are doing these studies presented their work in a way for the lay person to understand it. I mean it they present it differently when they’re talking to each other than when they’re talking to people. But we have a program called FD I mean you know about FD day but just to explain it for everybody else. Um FDday once a year the scientists and the doctors who take care of our patients come together and they present to the families the latest advances. And you know, we used to do it in person in New York every year, but since co it’s been virtual, which is actually better because people are tuning in from all over the world and all over the country. And you know, everybody can um watch it and learn. Um but it we the recordings are on our website. So you know if anybody who wants to learn more including you um can go on to our website and watch these presentations by the actual scientists and uh the foundation hosts this program every every year called FDday. Um so the the other two things which I’ll just I’ll just briefly touch on because I don’t want to talk too much. Um keep going keep going keep going. Um we have another clinical study that’s going on that’s not about um you know changing the course of the disease but it’s more about addressing um a symptom. So, um, we haven’t really talked about, you know, what how FD manifests itself in in people who have it, but, um, just to just to hone in on the mo from most people who have FD, the most serious and the most distressing symptom is crisis. I don’t know if your brother had crisis, but it’s absolutely it’s every day nausea. It’s vomiting. It’s wretching. It’s sweating. It’s it’s it it I mean, I’ve I’ve seen it. You’ve seen it. It’s it’s it’s miserable. I mean, you know, when it Nobody should have to experience that. And and when it gets really really bad and people it can’t be controlled at home, people end up going to the hospital and they have to get treated with IV therapy to get it under control. This the study that’s going on right now is you know those Listerine strips that you just put on your tongue and they dissolve. Yeah. The medication that currently can only be administered by an IV is on those meltable strips and you can take them at home. So what they’re doing right now is they’re studying that um they have uh maybe eight or 10 people in a clinical study that’s being run by the center at NYU um to study how safe it is for people to take it at home like what’s the right dosage how often can they take it what do they you know what what do they need to watch out for all those kinds of things and if if it’s proven to be safe then we can prevent a lot of hospitalizations I mean if people can be treated for for um crisis at home. How great if they don’t have to go to the hospital and be on IV and be in the ICU and all that sort of thing. So that’s it’s a you know it’s a different um it’s a different approach. It’s we’re treating a symptom as opposed to um affecting the course of the disease if that makes sense. Yeah. Absolutely. Yeah. And then um the the other the other research that I’ll just touch on briefly um I know crisper um is like a buzzword right now in um in science and um we do have um we we recently made a grant um to a scientist also at Harvard um she actually studied under um Sue Slagenhoff who I was just talking about before and she’s um looking at a crisper approach to um to FD I mean her research is not as far along as the other three because the other three are either in or very close to being ready for clinical trial. This is more of an exploration. Um but as but you know Crisper has been shown to have a lot of promise um in gene therapy. So, we’re really excited to see how she um and this is we have like a um this is a junior um investigator grant that that we were able to make thanks to one of our um benefactors because we realized gee a lot of our researchers like you know one you know one of them retired one of them is you know has been working on FD for 45 years we need to inspire the next generation of researchers so we were able to um to launch this um young investigators um request for proposals and we awarded the grant for for this. So um and you know all this stuff that I’m talking about is is made possible by you know gifts from our supporters. So that’s that’s really wild. What what uh what what got the grant started just out of curiosity which the the the young investigator grant? Yeah. Uh actually we had a meeting of our scientists. We brought them in from all over the world and we you know they all shared where they were at with their research and they kind of looked around the room and they said who’s who’s coming behind us? We and and we and some of them brought some of their junior people, but we realized we need to provide a pathway for them to to carry on to carry the torch um and continue the the important work that’s been done for the last generation. So, um yeah, we have we we had of a benefactor that um established a fund and um we were able to um to put this grant out and we had you know there it was a competitive um grant process and we awarded um one one of the grants for this study. Yeah. Wow. Yeah. Yeah. There’s I mean we’re we’re very very fortunate as a you know a very small disease to have some super smart super committed people working on this disease. That’s that’s just incredible. I know. It really is. It really is. Um I wanted to ask you so where would you say donations have the biggest impact whether it’s research patient patient support um awareness campaigns or is it just like is just is it just a combination of all of it or would you say that there’s like one specific uh part that it directly uh has the biggest impact on? Yeah. No, that’s that’s a really good question Jason. I mean I you know for the research obviously it takes millions and millions of dollars. So you know it’s hard to say oh you know your $100 donation or your $25 donation is going to make a difference. Um but what we have tended to do when it comes to research is this foundation funds um sort of proof of concept like we we’ll we’ll give a starter grant to a scientist who comes to us and says you know I have this idea I want to see if it’s going to work and so we might give you know a $30,000 grant or a $60,000 grant or something like that for them to just prove that their idea has legs and then they can go to the NIH or the FDA or a pharmaceutical company sometimes and get, you know, the big bucks, but they ha they have to still be able to first demonstrate proof of concept. And that’s where we can make a difference. Um, and you know, we can’t we don’t have, you know, tens of millions of dollars or hundreds of millions of dollars, but that’s that’s where we can help, you know, boost them, give them the leg up so that they can then go and get the institutional dollars. So, it it does make a difference. Um, but we also offer a lot of um supportive programs for patients and families. Um we have um during COVID we started the this program called Hangouts. Um you know people with FD were among the first to isolate. You know they’re very frail and they’re very um susceptible and you know they they were told right away you know stay home, don’t go out and they were feeling very lonely and very isolated. And so we found um a very dynamic person to sort of be a facilit a group facilitator. And um they were so popular that even when the world opened back up again, we’ve kept these groups going. And we have we have four different groups now. We have um the teenagers and we have the 20 year olds, the 30 year olds and like the 40 50 year olds. And they meet some of the groups meet every week and some of them meet every other week. Um, and they meet for like an hour and you know they they chat and they play games and they um, you know, talk about serious things sometimes and fun things sometimes, but it’s just bringing together people from all over the country and they they’ve gotten to know each other better because sometimes they they didn’t really have relationships with each other and now they’ve made friends. And so now that they know each other, they can text each other outside of the group or they can, you know, FaceTime each other. And so they’ve made friends and it’s been it’s been really nice. And those that facilitator is paid by the foundation for her time and donations pay for that. Um, as an example, we also have started offering support groups for um, siblings who have lost their loved one, for siblings who whose sibling is still living. But you know what? It’s not easy being a sibling. And I’m sure you can tell your your fans, it’s not easy having well, it’s not easy having lost a sibling, but it’s also not easy being the healthy sibling of someone who’s sick in the house. And you and you know there are people everyone who has had that experience has something in common. So we have a support group for siblings who have lost their loved one for siblings who have a a living sibling with FD. We have a support group for parents who have lost their child and we have support groups for caregiving parents. So those support groups are facilitated by a social worker and that social worker is supported by philanthropy by donations. Um we also have um an u well I’ll talk about the NYU center for a minute. Yeah. Yeah. Go on into that. Um the the center was established as I mentioned before 50 years ago. Um, and it is a it is a world-class center. And you know, anyone who has FD, if if they live in the New York metropolitan area, they use the center for primary care. That’s where they go if they need to see a doctor. Um, and they go to NYU if they need to go to the hospital. But if they live outside of New York, um their doctors, wherever they’re in, if they’re in California or Arizona or Minnesota, whatever, their doctors then consult with the doctors at NYU to make sure that their course of treatment is following the protocols that are developed at NYU. Um we have, you know, world-class neurologists who are experts in familial dysotenomia and in autonomic disorders. So we have doctors there, we have nurse practitioners there, and you know, we we bring in, you know, eye specialists and lung specialists and all, you know, all the other people that that they need to see to make sure that they stay as healthy and well as possible. And we make an annual grant to NYU to keep that center going. And that money all comes from gifts like those that will hopefully come in today. Um so um that’s that’s where the philanthropy goes to um really make a difference in the lives of people who have FD and in the lives of people who love someone who has FD. Yeah. I’ll never forget like all the trips that we had to do to to NYU and uh and all that and all that sort of stuff. But I the the doctors and everybody that were there, they were all so nice and they were all they were all so helpful. And uh I’m just I’m very I’m very appreciative that that that when Mitchell was around he had really great support and he had really great doctors that that that were not only just you know like really good at everything that they did but they were also very personal and they were also just super friendly and you know that that’s something that really mattered to me and looking back on that I was really happy that he got all the care that he needed. especially over there. Well, I’m I’m glad to hear that you have that memory. Um it is a very special place and um yeah, and it’s it’s um you know, it’s made possible by by the philanthropic support and by you know, people like you who do fundraisers that otherwise we wouldn’t be able to keep it going. So now without like naming names um can you share a story about a patient um who’s whose life has been impacted just by the foundation’s work or it doesn’t even have to be a patient. It could also could just be like a family too. I I think I I mean I don’t think there is a patient who hasn’t been impacted to be honest with you. Um, I mean I I I think every person that comes in contact with the foundation and comes in contact with the center at NYU um is is impacted in a positive way. Um I you know I I will tell you a story actually. Um we we recently um heard from a family in South America. Um and their son came to America to have spine surgery and they tested his blood and discovered that and gave him an FD diagnosis and he was 11 years old. And I mean, so he had he had no no idea they had no idea that he had FD. Um, it’s late. Yes, it’s a very late diagnosis, but I think that when in places where there’s not an awareness of FD and they’re not they don’t know to look for it, um, they don’t find it. So um and the the parents reached out to the foundation immediately and you know we were able to immediately connect them with other parents because the parents even you know I mean the doctors have a certain level of expertise right and the nurse practitioners are there to provide the medical care but it’s the parents who have been in the trenches with these kids And they are the ones that say, you know, this is this is the the food that you you know, the the feeding tube food that you provide and this is what you do when this happens and this is where you get that and this is and you know we we we we gave him we gave this family a community right away. Um we connected them with the medical center also because they they came to us first but we connected them with the medical center. They uh we connected them with families. so that they had a support system and um they wanted to come to the center to be seen to be you know by the experts in FD and and you know they very humbly said to us you know our son just had all these spine surgeries we’re kind of uh strapped financially you know is there is there anything that you can do and now like we don’t really have the resources to help every individual family with every financial challenge they have. We just can’t do that. We would be broke if we did that. Yeah. But what I but what I was able to do was I was able to say, you know what, we know of other foundations that provide um airplane tickets for families who are coming for medical treatment. Let me connect you with that organization. We know of a place in New York that provides free housing for children who are getting medical care at NYU. Let me make that arrangement for you. Um so like you know not so we’ve provided that we’ve connected them with the medical care. We’ve provided them with the community of parents who are going to be a resource to them. we’ve, you know, we’ve we’ve given them um, you know, I don’t want to say hope because that’s not really what we did, but we gave them the resources that they needed and the support that they needed. And I think that they really felt um it was like a a port in a storm kind of thing. Like all of a sudden they had this horrible diagnosis and they just didn’t even know where to turn. and they sent us an email on our info page and all of a sudden they had all of this information and and support provided. So, I hope that’s kind of what you were Yeah. No, that’s a that’s a really wild story. I mean I mean 11 years old that’s that’s late. That’s so late. That’s Yeah. Yeah. That’s insane. Um, I wanted to also ask, um, what would you say are like some of the biggest challenges that the FD community like right now is facing and what are you guys working um, on to try to um, I don’t want to say cure that, but uh, as far as problem solving goes, well, I would say that we’re to a certain extent we’re a victim of our own success. I mean, our goal is no new babies born with FD, right? So, aside from raising money to support the work that we’re doing to make the lives of people who have FD better, right? Um, we also want to make sure that people know about genetic testing, get tested, and know I’m not a carrier. I’m the only one in my family that’s not a carrier. And know and know your carrier status. Yeah. So, I mean, if you’re not a carrier, great. But if you are a carrier, you need to know that because you need to know if your whomever you’re going to be potentially having children with is a carrier or not. Now, FD is known to be is considered to be a Jewish genetic disorder, but here’s the thing. Not everybody knows their full ancestry. So you can’t just say, “Well, I’m not Jewish, therefore I’m not an FD carrier.” Because your great great grandmother might have been Jewish and you don’t know about it. In fact, I can tell you a story about that. Um, so I would say if if one of you is a carrier, the other one should get tested. Um, and there’s an organization called Jscreen, um, that’s based out of Emory in Atlanta that’s a great resource for, um, Jewish genetic testing. They have the kits. Um, they’re on a lot of college campuses. I mean, like in your 20s is the time to get tested and to know your your status, not when you’re already pregnant. Um, so, you know, we we want to make sure there are no new babies born with FD. And we’ve been pretty successful. and what you know having having funded the research in the in the 1990s to identify the gene that causes FD um has meant that even families who who where both parents are carriers and I don’t know if this is your family or not. not that familiar with your story, but in the olden days before the gene was identified, if you had a child that had FD, having another child was like playing Russian roulette because you had a one in4 chance, you know, just based on genetic science of having another child with FD. So, I mean, we know families that have three children with FD. I mean, they played Russian roulette and, you know, sort of lost, so to speak. I mean, obviously they love their children and everything, but it’s not easy to have, you know, and so a lot of people had one child and then chose not to have any more, but the genetic testing not only meant that you knew your carrier status, but it meant that you could do IVF and test the embryos and only implant the embryos that tested negative for FD. So that f even families where both parents were carriers could still have more children. And so we have success stories of families who were able to have more children. In fact, I met I met a woman in Israel whose FD son was like 36 and she had three more children who were teenagers because fortunately she was young enough that she could have more children after the gene was discovered. So she had a whole she had like a whole second family. And what a what a gift that is, you know, and that because this foundation, our foundation invested millions of dollars to identify the gene. Um, so so I think but but what you asked me about our challenge, so to go back to, you know, I just sort of give given you the backstory. Our challenge is that now we’re we’re only 300 people with FD. It’s really hard to get a foundation, for example, to be interested in what we’re doing because, you know, most foundations are looking for impact, right? They want to fund something that’s, you know, going to affect millions of people or thousands of people. And it’s like, you know, 300 people. Why would we say I was just going to say 300 people? That’s right. So, I mean, you know, if you know those 300 people, they’re very important people obviously and very deserving of, you know, our our love and our care and our money. But when you’re like an institutional funer, it’s like, well, you know, we’re not going to give to you. We’re going to give to, you know, the Michael J. Fox Foundation or breast cancer, you know, whatever these these organizations that are impacting millions of dollars. And of course, you can understand that. So, it’s it’s a challenge for us to raise the funds we need to do the important work that we’re doing because we are so small and we are so small because we’re achieving our mission of not having more babies born. Right? So, that’s where I that’s how I how I explain how we’re a victim of our own success. We’re successfully preventing new births, but by that token, we are not growing. I’m happy that I’m happy that you brought that up because I also just as a follow-up question, you know, uh I wanted to also ask like what goals are you also hoping that the foundation can achieve within just the next few years just uh besides that? Well, I think I think right now we’re really focused on those three gene therapies that um I talked about earlier um and bringing those to I mean one obviously is already in the clinic but um if we can you know it’s only in two people right now if we can get that into more people and if we can get those other two therapies into the clinic and you know because you know research is precarious. It doesn’t always it’s not always successful. So, we’re still we’re still at that, you know, you you you you go you take it to one step and then you take it to the next step and you hope that you get to each next step. And that’s sort of where we’re at. And so, we’re investing a lot of money and a lot of human energy and brain power. Um, and so I, you know, I think that we are really hoping that we can get those other two therapies and we’re very close. We’re very close. Um and that that was the excitement um at FD day this year is that we are so close because I think a lot of parents have been waiting for this time for a really long time and they were getting frustrated because they keep hearing about it and they keep hearing about it and every year it’s you know research takes time. You know you can’t just um you can’t just pull it out of a hat. Um, it’s and you have to prove your theories and you have to, you know, study you have to make sure you’re not going to hurt somebody more by giving them something. Yeah. So um yeah, I think um if if we can have success with these um therapies and you know uh stop the people who are living with FD to stop their FD from getting worse and give them a better quality of life. We would be ecstatic. We would be ecstatic. Wow. That that brings bris tears to my eyes. It does. That’s that’s it’s so you if you cry, I’m going to cry. Don’t cry. Um, I just wanted to ask too, um, just just as we wrap this up, if someone is if someone who’s watching or just hearing about FD or even just the familiar with the Sodenomia Foundation for the first time, uh, what’s what’s one thing that you would like them to take away? Now, obviously, you talked about getting tested and uh you know, that’s that’s definitely important, but what’s something else that you would like to say to those people? Well, I would say I think because this your program is a fundraising program, um I would encourage them to support um our work and to know that, you know, every gift really does make a difference. Yeah. Oh, man. I Lenny, I wanted to thank you so much for your time on here. Um, I I could talk to you. I could talk to you for I could talk to you forever. I really could. I I love listening to you and just listening to everything that’s going on right now with the the foundation and just listening to the research and all that type of stuff. But I really just wanted to thank you so much for your time and for you making the the effort to to just come on here, you know. Well, thank you, Jason. We appreciate what you’re doing as well. So, pleasure to be on your show. All right, guys. That’s going to wrap it up for this interview. Uh, thank you all so, so much for tuning on in. Again, the links are going to be all posted down below. And uh yeah, I’ll see you all very very soon. I just wanted to take the time to a thank Lanny uh not only for her time sitting down and just doing the interview with me, but also for her assistance as well as the rest of the Disordinomia Foundation of allowing this to happen. Without them, this is definitely not possible. I also wanted to thank everybody that has supported and that is supporting uh the channel and uh donating to the this autonomia foundation. Your contributions are absolutely uh incredible and I appreciate it so much from the bottom of my heart. Everybody else that has been involved that has helped me uh do this and made this happen. Without you guys it’s not possible for that either. I hope that you guys took a lot of valuable information out of what was being presented today. Whether it was from Laney herself, whether it was from me talking about Mitchell talking about FD and explaining what it is, and also just from the documentary that I did on Mitchell. I’m hoping that you took a lot of valuable info out of this. I absolutely will post the full video of the documentary and the interview that I did with Laney. So that way if you came in halfway through the interview with Laney or if you missed the the documentary of Mitchell or whatever the case was, you’ll have a chance to go back to that. Um, if you guys still have not donated yet, you’re more than welcome to do so. Uh the link to the link to donating is posted in the live chat down below. And again, no contribution is too much or too little. Um but I also wanted to thank you all for listening on here. Again, I’m really I I feel like that we covered a lot of ground today, guys. I think that there was a lot of valuable information that was being presented and I’m really happy with what was uh what was done today. So, with that, all right, I uh I think it’s time to get ready for some baseball. All right. And we’ll continue to spread the word and talk more about FD and we’ll continue to do that as we continue to go. But I’ll see you very soon. And yeah, don’t go anywhere. Heat. Heat. What’s going on everybody? I brought on a special guest with me today. Okay, this guy is absolutely awesome. He really is. Okay, he and I go way way back. And uh he also has a Philly sports channel that he does. He focuses mainly on the Sixers and on the Eagles and also wrestling as well too. Yeah. You know, he puts out a lot of content with that and I wanted to get him on here because he’s also very close with the FD community and knows all about FD. Um I wanted to get him on. His name is Mitch. What’s up, Mitch? How are you? I’m good, man. I’m good. I’m just happy to be here, man. I’m happy to be here. Like you said, we go way, way, way back. I’m close with your brother. I’m close with your parents. Whatever. So, I’m excited for this. Let’s go. Thank you so much, man. And uh so, so I just I wanted to start um and just ask you if you could share one message uh with our community about FD, what would it be? The one thing I would share with your community about FD, well, just like people too, people who have FD are just like everyone else, right? Yes, they have limits. Yes, they can’t do certain things. But they have emotions. We have emotions. We got things that we’re scared, that we’re nervous, all that. And we get loud, we get excited, all that. We’re just regular people at the end of the day. We’re nothing different. And if you guys didn’t know, I’m exactly like his brother, Mitch. We both have FD. Um, it’s just incredible what he what his life was like and what I go through on a day-to-day basis. We’ll talk more about that later, but um, yeah, we’re just regular people at the end of the day. When it comes to uh when it comes like the community programs, I wanted to ask, are you involved with some of like the social events that uh that I go on? When I was younger, I was like FD day, we would go there and stuff like that. But now it seems like after COVID, we weren’t much like most likely into that stuff. We just couldn’t travel and all that. My mom would watch it like FDday on a computer via Zoom and stuff, but not exactly like I once was when I was younger. So I got you. You know, the one thing that I always admire about you is that you’re you’re a go-getter. You really are. And I’ve really admired you in in in just that way because you’ve you’ve made your own channel. Yeah. And not only that, but you know, you work out, go to the gym, and uh you you definitely are an inspiration for me, and I just I wanted you to know that. Dude, you and I talk about that all the time. And it’s just like I just love doing what I do, man. I just go every day basis. I get a trainer here. I work out. I play basketball, you know? I just uh live life and you just got to live it to the fullest by all the by all the abilities I do have. So, I go out with friends as well, go out to dinners, engage, all that stuff. So, I’m just like ending the day. I’m just being me. Is there anything that you wish that people uh like that that people would know more about with FD? More with FD. So, you pretty much covered it yesterday throughout the entire 17 hours stream. You did the entire thing and I watched most of it. I was at the gym when you were doing it. Mostly you covered everything there with like the blood pressure, the health, all that. Um, I think you pretty much covered it. There’s nothing really left. I gotta say it’s just like there’s different kind I got one. There’s different kinds of people with FD. Like there’s different limits to each person. Like for me, it’s just like I can’t travel in a plane and stuff like that. I get motion sickness pretty easily. So, there’s other things I can’t do, but everyone’s different when it comes to FD. I don’t know if you remember us playing a COD basketball. I don’t know if you remember that at all. Like, I was not like actual player. I was more of like a volunteer aspect, you know, would be uh I would go play basketball with you guys. Me and you always made it like a competition. We always were like, you know what? score more points than you and all that stuff. So, you and I always had fun. You would always heat up from three, man. Dude, I still get no I still get uh mentions of me and my three-point shot. Like, dude, it’s just like I don’t know. But look, a uh Fantastic Friends, I don’t know if you remember that at all. So to the people who don’t know what Fantastic Friends is, it was a special needs group that would hold events for people with special needs, basically with tween, teens, adults, and I would run that. Me and a couple of my friends at that time, we were running uh his Mitchell would actually go to a couple of these events. Jason would he would help out and all this. So, it’s just like, yeah, went through a lot and I love every second of it. Absolutely. Now, look, I do have to ask you about the Sixers really quickly before before I do get off. No, you don’t. I do. I have to ask you, is Joel Limb going to be healthy? Well, I start out with that one, but uh I don’t know, man. I don’t know. It’s just a big question mark at the end of the day because you see him like up and down the court, you see him do certain things and then he’s out for a certain amount of time. He’s looking good right now. I don’t know if you guys notice, uh, he lost a lot of weight, he looks slimmer, he looks good on the court, but then once the season starts, I don’t think he’s going to play right away. I think he’ll miss a couple games here and there due to a ramping up. So, honestly, it’s just we got to wait and see with Joel Embiid in the Hulk squad. Tyrese Maxi, MVP. Yes or no? What kind of questions are you? You mean MVP of the Sixers? MVP? Yes. MVP of the Sixers? Sixers. This is his team. This is honestly his team. He’s the number one option right now. We got to build through Maxi McCain in VTS. That’s the way we’re going. And Embiid’s got to take a step back when he’s on the court. So, he’s MVP of the Sixers, not the NBA. Are you going to any games this year? No. No. I would not go to any single game. One of my good friends, he turned down free tickets. Really? He turned off He turned down free tickets, man. He’d like not go for free. They were so bad. I’m like, I could I’m not going to a game until something changes. I feel you on that. Yeah. Um I want to also mentioned too like you know you like you’re still involved with at the JCC. You still volunteer with them and you and you uh and you’ve done a lot with them. How how great have they been? So I’ve actually haven’t volunteered there in a couple years. I did work there like at the after school program. I started out volunteering. I worked there for like over a decade plus like 13 years and then off and on. Uh they’re good. JCC is really good to me when I did volunteer and stuff like that. But there were times when me and them did not get on the same page. So I got to throw that out there. There’s always tat. But uh yeah, it’s a great little community over there. That’s where I go to gym, work out, play basketball, all that stuff. job. That’s awesome. I love it there. I love it. Last question that I have for you before I get you off here. All right. Uh Eagles. Oh, okay. Eagles. I I have to end it on a positive note. You told me not to end it on the Sixers, so I have to end Good. Good. Um, look, they haven’t played their best brand of football during these first two weeks offensively. Everybody’s talking about Kevin Patulo. They’re talking about his lack of creativity. I still think that the Eagles have really great personnel and I still really like what they’re trying to build. Do you believe that they are going to be contending again in the NFC this year? Yes. Yes. I think they’re going to be contending. They’re the best team, right? If you can’t beat us, we’re the reigning defending two world champs right now. The next team is Green Bay Packards are right there. ever since they got Michael Parsons. But right to the personnel, man, they got everything cooked in for them. Yes. Would I like them to fix a few things? Absolutely. Like the play calling. I would like to use the push push a little less now, not to make it so predictable. But yeah, they’re going to be good this year. A lot of uh hoes should be fixing, especially Dorian Jackson with CB2. But uh yeah, they’re doing their thing. Mitch, I’m gonna post your plugs down below, of course, but where can people find you? I appreciate it, man. I really do. I really appreciate this. You guys can find me Miss Coxy on YouTube, MK Mitch World is my second channel, Hardcore Sports Network, uh, Street Punk Sports PA. Most of my ego stuff goes there. And yeah, that’s where you can pretty much find me, guys. That’s awesome, man. I’m I’m really happy that I got you on here because I wanted to um I wanted to I wanted to give you the floor. I really did because I feel like that I feel like that I feel like that like what we’re doing is really powerful and obviously like we’re we’re do you know I wanted to do this in honor of my brother but it’s also just I I thought that it was really important just to try to you know to just just try to get you on because also like you’re a part of like the YouTube community as well and uh I wanted to give you I wanted to give you a voice too. Now if you guys go back on my channel there was a video where I spoke at Stockton University. I don’t know you remember that at all. I do remember that. You do? Yeah. That was really fantastic friends. They wanted the heads people to speak. I was one of them. It’s on my channel right now. It’s not going anywhere. So, speaking at Stockton University, if you want like learn more about me and FD, that’s where you can go find it, man. That’s where you can go find it as well. You’re the best, man. Thank you so much for coming on here. Of course. And I miss your brother. I miss him so much. And you and I talk about this all the time. If it wasn’t for him, me and you wouldn’t have gone closer to where we are right now. Like guys, we go out once a month. We talk a couple times on the phone and stuff. So yeah, your parents are great. Your sister’s great. Your dogs. Um, everyone is great. Your family, man. And, uh, we got to do something with my family and yours. We got to make it happen. We got to. That sounds like a plan. All right, guys. That’s going to wrap it up with this interview. Up next, we got Phillies and Diamondbacks at 9:40 p.m. Eastern time. I hope to see you all there. And uh yeah, I’ll see you all soon. Love you guys. [Music] [Music] graduated from Rowan University in the spring of 2022 with the sports communication and immediate degree. I got to actually call minor league baseball and G-League basketball games while I was in school. And then I graduated and as soon as I graduated, I went to NFL Films in Mount Laurel, New Jersey. As much as I love that experience, I miss putting on the headsets. I decided, you know what? Talk is cheap. I have a laptop that’s in my house. And so 21 months later, here we are still on YouTube calling games and building an incredible loving community on here with the people that I call my Philly freaks with a capital P and a capital H. We go live for every single Phillies, Sixers, and Eagles game. And we do it like old school radio playbyplay style. I’m Jason Joseph and this is playbyplay with JJ. I showed a swung on barrel out to right field. My boy baseball that baby is long gone. Hi everyone. Hopefully you’re all doing well. For those of you who haven’t heard, I’m hosting my very first charity stream on September 18th and September 19th to support the familial dardonomia foundation in honor of my brother Mitchell who passed away from this disorder 5 years ago. So how the schedule is going to work is like this. On the very first day, we’re going to be streaming for 15 hours. During the first three hours, I’ll be talking about familial dardonomia, sharing stories about my brother and what he dealt with on a day-to-day basis and just raise as much awareness as we possibly can. Then during the next 12 hours, we got MLB Diamond Zone and we will be on doing our regular Diamond Zone stream. For those of you that don’t know, MLB Diamond Zone is something that I came up with and basically it’s like NFL red zone, uh, but it’s for baseball. On the very next day, we’ll do Diamond Zone again. That’ll be from 6:00 up until 9:30. And then we got the Phillies game. They play at 9:40. They’re taking on the Arizona Diamondbacks. So, in short, we’re going to be on for 22 hours. No ads will be played during those 22 hours. I am aiming to raise $500 during those hours of streaming. Again, no pressure to donate, but if you can, every little bit does help. If you could just spread the word, share the post that I posted on my community tab, I would really appreciate that. I’m just looking forward to making a difference together with you guys and doing this in honor of my brother Mitchell. I think he’d be really proud and I’m really excited about this. Let’s do some good. What’s going on everybody? Hopefully you’re all doing well and having yourselves a very, very fantastic day. My name is Jason Joseph. This is Playbyplay with JJ. We got the Phillies taking on the uh Arizona Diamondbacks tonight. I hope that you guys are doing well and that you’re having yourselves a very fantastic night. Uh we are continuing to fund raise of course for uh Familial Dardinomia in honor of my brother who passed away from this disorder five years ago. Um, I’m very thankful for uh everybody uh donating to the channel. We have raised over uh coming on into today. We’ve raised over $5500. We’ve gotten 2700 just through the website and everything that’s been on the website has been somebody has offered a double which is incredible. And we have raised at least over 900 in super chats on YouTube. um and also PayPal combined uh which is absolutely incredible and I really want to thank you all so so much. Um if you guys have not donated and you would still like to donate, please feel free to do so. The link is still down below. My my mods will definitely uh do that and uh and uh continue to post that. We got a Phillies game that we got to get into. Uh and we have a lot to talk about with this Phillies team right now. They got to clinch that buy. They do. It’s going to be really tough to get the number one seed, but you’re still going to have to clinch the buy because you don’t want to play in a wild card round. That’s the that’s the last thing that you want right now because you want this team to be back and you want them to be healthy. Al Balm is returning tonight, which is obviously really good news, too. Um, and that is really, really awesome. Uh, so it’ll be exciting to have him back out there in the lineup as well. Um, and yeah, I’m really really looking forward to that. Um, there will not be a a live breakdown of every uh scoring inning, if you will, a scoring breakdown of every inning because we have our title that’s up there, which is obviously the most important thing uh for this stream tonight. So, we’re still doing this in honor of Mitchell. And uh yeah, like I said, if you guys still want to donate, you’re more than welcome to do so. If you do decide to donate, super chats are welcome, but we do encourage you guys to donate via the website because everything that’s donated on there is getting doubled. Uh thanks to everybody that’s uh helped out. Um what else do I have? I have to change something really quickly. Just bear with me in mind. Uh Ara, bear with me for a second. Okay. All right. We are ready to get on into everything for the Philadelphia Phillies. Okay. So, let’s get into the starting lineup for tonight’s game. It is actually 95 degrees out in Arizona. The roof is closed. Uh, winds are blowing southwest at 7 miles per hour. It is hot there. Harrison Bader will lead it off for the Philadelphia Phillies. And then it’ll be Kyle Schwarber, Bryce Harper, JT Rial Muto, Brandon Marsh, Alec Balm, Max Kepler, Wes Wilson, and Bryson Scott. So, Bader is leading it off for the Philadelphia Phillies. and then Schwber, Harper, JT, Marsh, Bow, Kepler, Wilson, and Scott. And on the mound for the Arizona Diamondbacks, it’ll be Ryan Nelson, who has started in 21 games. He’s pitched in 31. He has a 7 and3 record, 143 innings under his belt this season, and a 3.34 ERA. As well, he’s he has allowed 39 walks. He is also 122 strikeouts on the season as well. Batters are hitting just 206 against his four seamer, 209 against the slider, 260 against the cutter, and 196 against the curveball against him as well. Diamondbacks are in their purple and uh yeah, they’re in their purple and blue uniforms, like very light blue. They have a new logo that is on the front side of the cap. Phillies are in just their regular away uniforms with the the gray tops, the gray bottoms, and the red sleeve as well along with the red Phillies hat with the white Phillies logo on it. So again, it’s Bader, it’s Schwarber, Harper, JT, Marsh, and after that, it’s Bow, Kepler, Wilson, and Scott. And those are all the starters for the Philadelphia Phillies. Defensively for the Arizona Diamondbacks, they will have uh Taiwa over at first base or Tawa over at first. At second base, it’ll be Marte at third, it’s Alexander. Short stop is Purdomo. Out in left field, it’s McCarthy. And then Al Thomas is out in center. And in right field, it’s Corbin Carroll. All right, first pitch as we start things off is in there for strike one. Bader hitting .283 on the season so far. Comment what your final score predictions are down below. I really appreciate you all so so much for being on here. the pitch. That ball is flyed out over towards center field and that’s going to be caught by Thomas for out number one. I got a lot to catch up with you guys on. I really do. I got a lot to talk to you about. Uh but we’re going to wait until we’re settled on in. Okay. Um yeah. Uh as far as the crew chief goes for tonight, we’ll get into that, too. Um it’ll be Gabe Morales as the home plate umpire Alex Tossy over at first. Cory Blazers at second and at third it’s Manny Gonzalez. Here comes Shwber and he takes a strike. That’s a fast ball. The ball is one strike to Kyle Schwber sitting 243. He has 53 home runs and 128 RBI. There’s 3 seconds left on the pitch clock. Nelson comes set and fires. There’s a foul ball over towards the right side. Don’t forget to like, don’t forget to subscribe and turn on the bell icons, too. And that way you will know when we do go live. I’m going to go six to three Phillies, says Travis. And again, thank you all so much. I will make sure that uh I will make sure that I try to catch up a little bit on chat as much as I can. Just got a lot to deal with. 02. And there is a foul ball. I do want to say hi to you guys. I didn’t want to jinx it yesterday morning when you started, but I was going to tell you that you could raise 10 times your original goal. Congratulations, brother. Much love. Thank you so much, man. Thank you. O2 pitch on the way and Kyle Schwber looks at a ball in the eyes of Morales. The Diamondbacks are 40 and 35 at home. They have a 77 and 76 record on the season. One ball, two strikes, Nelson gets set at the belt. He kicks, he deals, and that pitch is outside for ball two. Diamondbacks currently uh standing, they are six games behind the San Diego Padres’s for second in the wild card. But as far as the final team goes, they are uh two games in MAC in the Mets. Two pitch, ground ball hit over to second base. And the throw over to first is in time. Nice sliding stop there made by the second baseman, Catel Marte. So Schwber is retired. Also in that NL uh in in that NL wild card race, you got the Reds who are half a game above the Diamondbacks. They are one and a half games behind the Mets. And then you got the Giants who were sliding now. It seems they are three games behind the Mets. And then the Cardinals and the uh Marlins are right behind them at five and six. Harper this year batting .263 with 27 home runs and 75 RBI. The ball is one strike. Nelson gets set at the belt and fires and throws it upstairs. One ball, one strike. So, Bader flat out to center, Schwarber grounded out to second, and Bryce Harper is up. The one-1 pitch to Bryce that’s down. I see that Spencer Steer had two homers against the Chicago Cubs. Two balls, one strike, and the next pitch on the way. There’s a ground ball here. It’s hit over towards first base. And the inning is over as the first baseman does get to it on the bounce. All right, so a one, two, three inning. Phillies go down in order and they’ll be back in just a few moments. The Diamondbacks lineup, it’ll look just like this. It’ll be Ger Heraldo Perommo batting in the leadoff spot for them. So Purdommo will be hitting first and then it’ll be Catel Marte batting second. Marte is hitting second in the lineup. And then you got Corbin Carroll batting third. Gabriel Marino batting fourth. He is the catcher. Bla1 Alexander. They usually start him out over at third and then they eventually transition him out over to left field. He is batting fifth. And Adrien Del Castillo, he will be batting in the sixth spot and batting seventh right behind Del Castillo will be Alec Thomas. Eighth will be uh batting eighth for the Arizona Diamondbacks. So you got Tim Tawa batting in the eighth spot and in the nine hole for Arizona will be Jake McCarthy. So just to recap, it’s Purdomo, it’s Marte, Carol, Marino, Alexander, Del Castillo, and then Tawa, and McCarthy. So that is how the lineup looks for the Arizona Diamondbacks. defensively for the Fightings. Over at first base, it’s Bryce Harper. At second base, it’s Wes Wilson. The third baseman is Alec Balm. Bryson starts over at short. Catching is JT. And of course, in the outfield, you got Bader in center, Marsh in left, and in right it’s Kepler. So, Castianos is on the bench. And on the mound, of course, is Taiwan Walker for the Philadelphia Phillies. Walker does have a 4.170 RA, a 5 and8 record and 79 strikeouts on the campaign so far. The pitch that’s down in the way for a ballo averages at 289. Walker comes set and he deals and the pitch is popped up. It’s hit out over towards the right side of second base and Wilson gets under it, backpedals just about three steps or so and he will make the catch for the first out of the inning. More about Taiwan Walker. He’s gone 116 and two/3 of an inning. He has walked 37 in those amount of innings. This will be his 21st start. His record is at 5-8. This will also be his 32nd appearance. And he fires a force that just catches the outside corner for strike one. No balls, one strike. Adrien Del Castillo. The ball is one strike. The windup and the pitch. That’s called a strike over on the inside corner. Can’t wait for the playoffs to see these streams pull in a thousand viewers. Chat’s going to be nuts. Thank you so much, man. Shout out to the chat. Shout out to you guys. One ball, two strikes. Things will be settled pretty soon and then I will catch up to chat. Pacer says I’m going to go seven to four Phillies. Here’s the one two on the way. And there’s a high fly ball hit out to deep right field. It is gone and Arizona up on top one to nothing. Catel Marte just absolutely blazed that thing out over to right field and gets his 26th homer of the season. And that’s RBI number 67 as well. That fast was up and that’s where Marte loves those fast balls. Thank you so much for the $20 super chat, Steve. Symbol, folded hands, medium, light skin tone. Oh, thank you so much, Steve. Shout out to you. Thank you very much for the $20 super chat, my friend. One ball, no strikes. And up next now is Corbin Carroll. And Carol takes a strike on the outside edge. He was ahead in the count, one-0. And it’s now one ball, one strike. Again, if you guys do want to donate to the Familiar Dutenomia Foundation, uh you’re more than welcome to do so. You definitely do not have to do uh you definitely don’t have to do it. The next pitch, that’s a line drive it out to center field for a base hit. And Corbin Carroll does get on. Uh the money goes to the familiar the Sodenomia Foundation. And we’re doing this fundraising stream, which we started yesterday. We streamed for 17 hours yesterday. And uh we’re doing probably six, seven hours today. We started, it was really a three-hour stream. And uh of course the Phillies game on top of that, too. So I’d say about six to seven, over six probably. Here is Walker’s first pitch to Gabriel Marino. that’s in there for strike one. So, Steve, thank you so much. Uh, in a short, what I’m going to do is I am going to uh list everybody that has donated and thank them all very much and shout everybody out that did it. Um, and also you will be getting thank you notes as well. uh people over on the YouTube side, if you could just uh message me on on the hotline, uh if you did donate uh over over on the YouTube side and even on the PayPal side, too, I really would like to get in touch and just thank you from the bottom of my heart. Uh write you personal messages. One ball, one strike, and we’re in the bottom of the first. There’s one away. There’s 10 seconds left on the pitch clock. Marino is two for two in his career against Taiwan Walker. Walker gets set above the belt and the 1-1 is inside and high for ball too. Disney says I’m going to go 28 to 10 Phillies. That’s a football score. That’s so funny. Guys are the best. 5 to2 Philly Schwber MVP. Two balls, one strike. And the next pitch is just outside for ball three. And Presley’s almost up, Presley. Steve, thank you so so much. Three balls, one strike. Walker gets above the belt, tosses it back over to first, and Carol dives back in there safely. Marte hit a solo homer here in the bottom of the first off of Taiwan Walker and Carol got on with a single. There’s one away though. 3-1 pitch. There’s a fly ball hit out to left field. It’s looking foul and a little slice out of play. And now the count is full. Phillies did win the first series against the Diamondbacks back in early May. They played a three-game set out at CBP and they ended up taking the first two games and they lost the third one and a heartbreaker. That game went into extras. 11 to N was the final score. Five pitches in this at bat and so the count is full and the pitch ground ball hit over towards the right side almost hit the runner Corbin Carroll and it goes out to right field for a base hit. And Carol does round second. He does head on over to third and Kepler will just throw it back over towards the mound. And so back-to-back singles allowed by Taiwan Walker. And Bla1 Alexander is coming up. That thing was lined really sharply. Took a hop and then Carol just ran or yeah jumped on over it. He hurdled over it. Three hits in this bottom of the first and only one out recorded. And Alexander is coming up to the plate. Right-handed hitter with a 333 on base percentage, a 410 slugging percentage, a 244 average, seven home runs, 44 RBI. One out, bottom of the first, and the pitch is inside for ball one at 91 miles per hour. You guys can also scan this QR code. If you’re watching on a laptop or an iPad, if you want to scan your phone to see if that QR code works, let me know. You don’t even have to donate. can just let me know if the QR code works cuz the foundation was really nice and they gave that to us too. One ball, one strike to Bla1 Alexander 1-1 pitch. Ground ball hit over to short staff to flip over the second. There’s one to throw to first and that is in time. Alexander wants a review here. Let’s see if Tori Lavulo will challenge. There’s stop walking back over towards the dugout. He’s walking back. Sort of stopped. Well, they just cut to a replay. See again if he beat it out or not. Yep, he did. They have a case. So, Arizona will challenge. He got his He got his foot in there. Let’s see on this replay here. Oh yeah, his right foot absolutely hit the bag before it got into the glove of Bryce Harper. So that is the wrong call made over there by Alec Alex Tas Alsi, excuse me. QR code works. All right, good. Thanks. Thanks for letting me know. So, who gets the buy? Most likely the Brewers and the Phillies. Yes. All right. So, the call is overturned. He is safe over at first. That’s going to go down as an RBI fieldielder’s choice. And Adrien Del Castillo is coming on up to the plate. Two to nothing Arizona. And a runner over at first. We’re so close to getting 90. Let’s go. Let’s go, chat. DS back over to first base. It is not in time. We got 150 tuning on in. Two outs. Bottom of the first and the pitch is in there for a strike. The throw to second base is in time to get Alexander. [Music] The job by JT to throw that thing and it just landed into the bread basket of Bryson. All I had to do was just catch it. The glove was right there. And so two nothing is the score thanks to a solo homer by Catel Marte and an RBI fieldielder’s choice by Bla1 Alexander. We’re going to be right back. Don’t go anywhere. I will see you in just a few moments. All right, JT Realmuto is coming on up to the plate and JT stares at strike one. That’s at 96 miles per hour. The ball has one strike to JT. His average is at 261. He has 12 homers and 51 RBI. 34 years old. Nothing in one is the count. And the next pitch is taken down for ball one. All right, chat. What’s going on, man? Yeah, the bots are going off. Uh, we’re so close. Who do you have going yard tonight? JJ, one ball, one strike, and the next pitch to Riyamo is taken inside for ball two. Um, tonight we have uh I don’t I don’t know. I don’t know who I have. I’m going to go I’m going to go Kepler. I’m gonna go Kepler. The 2-1. There’s a fly ball hit over towards right center field and Thomas is there and he will make the catch. I will also go with Bader tonight. Hey JJ. Hey y’all. The Phillies are playing JJ. Oh, wait. Larry, are you behind? Are you actually joking? I couldn’t tell. The pitch that’s taken for a strike. Kepler beater. That’s it. That’s it. Nothing. And one is the count. And the next pitch to Brandon Marsh. That ball is popped foul and hit over towards the third base side. And it will just go out of play. No, you asked what’s going on. Oh, gotcha. Gotcha. Gotcha. Gotcha. Gotcha. Makes sense. Oh, chat. What a day for me. What an What a day. It’s kind of insane. No balls, two strikes. What a week. Really? 02 pitch and that’s up high for a ball. If the playbyplay sounds a little bit different tonight, it’s because this is also a fundraising stream as well. I’ve made that announcement a lot that we’re that we were extending this to Friday. So, um the one two and that’s a foul ball. So, we might still be bringing up uh more plugs as far as where people can donate and talk more about Mitchell as we continue uh to do this and still do the playbyplay as well, but that’s going to be a part of the nuts and the bolts of it tonight. One two pitch ground line drive hit out to right field. That’ll get down for a base hit and Corbin Carroll does field it and the throw back over to second is cut off. And so Marsh does break the ice for Philadelphia. She says, “I’m very stoked. Got a nice late game to watch. Got a healthy chat. Got JJ’s fundraiser stream. It’s going to be a good night.” Says Steve. Uh if you guys did not watch the very beginning of this, I did play a replay of what uh happened yesterday during the very beginning. Uh not the very very beginning, but once we were an hour into the stream, I talked about Mitchell’s condition. I talked about FD. Uh and we were yapping for about an hour. I don’t I don’t like to say yapping in that moment. We were we were educating. We really were. Yapping to me is just basically talking. I thought that we were presenting and we were and and there was a purpose to it, you know. One ball, one strike. That’s to Alec Bow. And then we replayed the documentary uh that I created on him when I was in high school. And then of course we had our interview uh with Elany who is the uh senior director of the this autonomia foundation. I really hope that you guys got a lot out of it. If you did not watch it, you can go back to the beginning of the stream on your own time. I will also uh update it. I will I will post a actual VOD where all you get to see is just that and you can watch it on demand. That’s why they call it a video on demand. Two balls, two strikes. That way you don’t have to hunt for it. It’s just right there and it’s in the title. Two balls, two strikes to elbow. We got a runner on over at first. The Diamondbacks do lead it two to nothing. And the two- two pitch is down for ball three. The Snakes did get uh both runs in the bottom of the first. Of course, Catel Marte had a solo homer and Blades Alexander had an RBI fielder’s choice. Three balls, two strikes. The toss back over to first is not in time. I learned quite a bit, says Larry. It’s good. That’s good. 3-2 pitch. That ball is fouled away. I uh I’m hoping that just as we continue to do streams, I’m I’m hoping that last night and then just yesterday in general, of course, that you learned about the disorder, but also that you got to see me in a different light, in a good way, or if if your did if your perspective did change on me, I hope that it was a positive. You know, three balls, two strikes. Bow did foul off the next pitch. The documentary was awesome, JJ. Thank you. I I I captain payoff pitch. There’s a line drive hit out to right center field. That’s going to split the gap and go all the way towards the wall. Marsh being waved home by Dusty Wan. And the throw is cut off and he will stand up as he goes home. And Bone will stand up as he goes over to second base with an RBI double. All right, two to one. Good swing by B. [Music] All right. So, now Max Kepler comes on up to the plate and Kepler takes inside for ball one. Hey JJ, how are you doing tonight? I’m doing good. Uh, did you get the Gatorade pack uh bath? No, I I slept on in today, guys. I as soon as the stream was over, I could have cut shorts. I didn’t get any sleep. I got like maybe two two to I would say like two to three hours of sleep combined over the last two nights. I’m I’m not exaggerating and I need my sleep, but I slept in today and I as soon as I crashed the bed, I was out for at least like 11 hours. One pitch. There’s a fly ball hit out over towards shallow right field. Carol’s going to be there. He’ll make the catch for out number two. So, there’s two away. And you can even ask Gabe that. Gabe came on into my room this morning. He was fixing my computer and I just fell right right back to sleep and he was just doing his thing. He’s been awesome. I, you know, I’m not doing any of this without the people that have really helped me. Uh, even just during the stream yesterday, Gabe was just so helpful. The mods have been so great. Um, and obviously my parents have been so awesome. Here’s the pitch. And that’s a cutter that’s in there for strike one. You almost made me cry at work. First thing in the morning at work yesterday. That’s good. Well, maybe not crying in front of your boss. That’s That’s probably not a good thing. I’m not trying to get anybody fired. Oh, one pitch. Crown ball dive and stop at Berdomo. He gets up. He throws it over to first. What a bang bang play that was. That is unbelievable. Heraldo Peromo just took away a base hit and he got up as he shot out of a cannon just to make that throw over to first. And that did not even take one bounce to get on over to Tawa. And the inning is over. Okay. So, we go to the bottom of the second inning. Yes. The video is good for us to see this, Ken. Yeah. I again, you can you can listen all you want. you can listen to me speak, but seeing how things were and watching the nurses, not even just watching him and how he walked and just the way that he looked, but get a view of my mom, get a view of my dad, get a view of my sister, you know, and watch how he went up the stairs with oxygen and you know him getting out of the car, him riding a bike, you know, all those things and looking at the pictures. It definitely gives you a different perspective for sure. The music is a little bit glitchy. Uh that’s uh yeah, it might be a little bit uh glitchy tonight. couldn’t sleep last night, so watched your stream and it was really nice uh that you had uh your friend Gabe on. Yeah, I wanted to get him on. I figured that when there was one game left, it was a good thing, you know, and I wanted you to meet him and you saw me in a different light there, too, because that’s me with somebody else doing color, you know. So, I kind of miss having a color guy. It made me realize that yesterday the pitch and there’s a swing and a miss to Adrien Del Castillo. Bottom of the second and Walker kicks and fires and the pitch is swung on and missed. It’s so different when you’re doing it virtually when it’s in person. Like that’s that’s where the the magic happens with the color commentator. One ball, two strikes. Stell Castillo did take strike two. The algorithm probably does not like us right now because uh it doesn’t know where to send everybody because of the title. But even though it does say Phillies in it and Diamondbacks in it, they’re probably saying to themselves, “Eh, we don’t know.” Two balls, two strikes, and the next pitch, there’s a line drive. It’s hit out to right field. That’ll get down for a base hit. It takes about two bounces in front of Max Kepler. And so Adrien Del Castillo is aboard with the fourth hit of the ball game for Arizona. So that brings up Alec Thomas to the plate. Thomas will fly this one out over towards shallow left field. Stock gets under it and he will make the catch as he called off Brandon Marsh. question. I was very impressed with you and your family. Thank you. Oh, with your family. Yeah, they’re good people. They’re very good people. One ball, no strikes. Tim Tawa is up at the plate. Walker gets set and he delivers. There’s a fly ball hit out over towards right field. Kepler is there. He’ll make the catch. And there’s out number two. I agree. Win, Steve. Thank you. Thank you very much. Uh, what did Scott say? I got to keep uh, what sort of pizza did you have? And is there any pizza left in the in the uh, in the oven box? I actually did get pizza today. I did not eat any pizza. I might get some a little bit later, Gabe. Not right now. One, no strikes to Jake McCarthy. Not right now. Here’s the one. There’s a ground ball hit over towards shortstop Ryson Staten. The throw over to first and it’s scooped up by Harper. That was a nice play there. The throw was actually in the dirt and Harper had to just scoop it up very quickly. And so the inning is over. We are going to go to the top of the third inning. It’s two to one Arizona. I’m looking at the stream and I’m like, wait, we’re not we haven’t been streaming for 3 hours 38 minutes. And then I’m like, well, yes, we have. The game has just been very short so far. I had sweet red pepper pizza with a wheat crust. Yes, there is half half left in the fridge. Nice. Very nice. Very, very cool. All right. Uh, story time chat. Ready for this? Okay. So, um, I got a little story for you. Grab your grab your books out in the chat. So, um, Gabe thought it’d be a really good idea to like go out for dinner as the stream was running, uh, because he he wanted to celebrate, right? And like, who wouldn’t want to celebrate? That’s that’s like a really really cool thing. So, we went out to eat. Okay. I won’t I won’t like name the restaurant, uh, but we we did go out to eat. Okay. And it was it was very pat there. Okay. Um and it was really pat. So we we sat at the bar. Uh but it we got there around 7:00. Yeah. 7. We didn’t get out until like 9 o’clock. And it took us about an hour 40 minutes just to get our food. took a while. Um, and then they o they almost overcharged Gabe for the food and they had to change that. And after they got that whole thing settled, um, we’re like trying to rush to get out because we got to we got to be home. Like I got to I got to start like I got to start my timer for my stream. And I got to I I got to be home, you know, and I got to get my water. I got to run on up here. Drip drip drip, you know. One ball, no strikes, by the way, the starts. And the next pitch is inside. Uh, but then I’m trying to get like the waiter’s attention because the pen doesn’t work. I don’t have any cash on me. So, the pen doesn’t work. I tracked down the the person by at the bar. It took them about like it took about like an extra like four minutes, but we finally got the pen, which was a big dub. And uh we made it home just I kid you not, as soon as I started that timer, as soon as I started that timer that I it was it was perfect. Uh because we got home like right after Mitch Kofsky’s interview was done. I like ran upstairs and I just pressed all right. go into the pregame mode. But yeah, it took us like almost two hours just to get our food. So, one out and the pitch to Bader and there’s a high drive hit out over towards left center field, but that’s going to get down for a base hit as it bounces on the track and then it hits off the wall and there is a double. It was really more of a line drive there, but had a chance I thought of going on out, but it just died on the warning track. But, uh, Bader is able to get a double out of it. That was a mistake thrown right down the middle of the plate. And Bader is over at second base. Kyle Schwarber is up at the plate and Schwarber takes a fast ball right down the middle. Yeah. Or entre. Okay, that’s Yeah, when I say food, I I meant to say entre. I got like a wonton soup. The ball is one strike and a pitch. And that is inside for ball one to Kyle Schwarber. So, one ball, one strike to Kyle Schwber who grounded out in the first. There’s 5 seconds left on the pitch clock to Kyle and the 1-1 pitch. That ball is grounded foul. So the count is one and two. So yeah, I we really had to rush. Took us like almost two hours just to get our food. 5 seconds left on the pitch clock and the pitch to Kyle. That ball was fouled off. It was a high pitch and it will go out of play. Billies are down two to one. Catel Marte had a solo homer and Blades Alexander had a RBI fieldielder’s choice in the first inning. In the top of the second, Al Bome had an RBI double. Ryan Nelson is on the mound and Nelson throws the next pitch down for ball two. two balls, two strikes to Kyle Schwarber. If you guys notice, no ads. No ads today. The two- two pitch on the way to Kyle swinging a miss. That fast ball was inside and it came at 98 m per hour. And Shver is down on strikes. You deliver. No. No. We were at the restaurant. We were at the restaurant. Are the chat messages coming on in a little bit late? No. Okay. Just wanted to make sure. One ball, no strikes to Bryce Harper. And here’s the next pitch. And that is high for ball two. That was at 92 miles per hour. No, I ate I ate right there. You want it to go out. Two balls, no strikes. And that is inside for ball three. Oh, that was for Jiva Nudes. Oh, got you. Got you. Three 0 pitch that is on the outside edge for strike one to Bryce Harper. All right, Bryce 0 for one. He did ground out over to first his first time up and he takes down low and away for ball four. And he is on with a two out walk. All right, hit that thumbs up button, folks. Subscribe to the channel. Turn on the notification bell icons, too. And that way you will know when we do go live. Andrew is here. What’s up? What’s up, my friend? Um, again, guys, if you do want to donate to uh the Familiar Dutenomia Foundation, obviously you certainly do not have to. Uh, but if you would like to donate, make sure that you do it by clicking on that link. Um, so make sure that you guys do that because every donation that is delivered towards that is uh going to be doubled. One ball, no strikes to JT Riyamuto. Nick, thank you very much for the $5 super chat, man. JJ, the video compilation of your brother was fantastic, buddy. I was a proud friend watching that. You did great, man. Thank you, man. I really appreciate that. The one pitch is taken for ball, too. Really, thank you so much for the $5 super chat. You’re awesome. [Music] guys on on YouTube just tonight just tonight on YouTube we have raised $25 actually sorry we’ve raised $30 on YouTube tonight that’s incredible um all right uh JJ were your how sore were your legs this morning really not that sore Uh, you know, I’ve been I’ve been exercising, so it was really good for me to just do that. You know, it’s definitely not sore, but thanks for asking. Thank you for Thank you for asking that. The two pitch and that’s taken on the outside corner for a strike. I was just I was more so just so tired after yesterday. And I was happy that I did that because that made me more tired, you know, just from all the, you know, in the two JT. There’s a fly ball. Hit that over towards right field and that is going to be caught for out number three by Corbin Carroll. So there are three outs and we are going to go to the bottom of the third inning. Uh Nick with another $2 super chat. Oh man, thank you so much, dude. You got to come to lunch one day with me and Mitch. Man, I would love that uh during the during the off seasonason when things are dying down. I would absolutely absolutely love to do that for sure. Thank you so much for the $2 super chat. Nick, you’ve donated like what $12 tonight, man. That’s insane. Thank you so much, dude. Nick just wants to hear the MVP chance again. He just does. [Music] Thanks, though. That’s so nice. Oh man, we beat our goal. Thank you all so much. Every uh donation through the website is still doubled. Let’s keep it going. Yep. Yep. We’ve we’ve we’ve not only beat our goal, we’ve uh 10 times our goal. I really had like I I had no idea that it would be like this. I didn’t know what to expect. I didn’t know what was realistic, what was not. And I mean, I really wasn’t expecting much. But now, next time that we do this, I I uh I I’ve definitely learned a lot from just doing this alone, you know, and navigating it for myself. I figured that there were going to be bumps in the road and there were definitely some learning curves that I had to that I had to deal with and I’m I’m fine with that for sure. But overall, I would say it’s been 1,000% a huge success and it surpassed everything that I thought. You know, I thought that we were going to hit more obstacles and we hit some, but a lot of it was just a lot of it was not during stream. I thought that there were going to be a lot of mistakes during stream, but a lot of it was just coordinating and uh you know, me talking to myself, figuring out how I wanted to like logistically do this and uh that type of stuff. But we got it all figured out. The pitch and that is taken inside for a ball. And by coordinating I I mean just like with a YouTube uh you know that type of a thing. The foundation has been absolutely awesome. I want I want to thank them as well. I really want to thank them for allowing us to do this. One ball, one strike to Heraldo Perommo and he lines a ball down the right field line. That is a fair ball and he will head on over to second base. So, what a game he’s having so far. He had an awesome diving stop over at short to take away a base hit from Wes Wilson. Could have been an RBI single. And he is now standing up over at second with a double down that right field line. Then just stayed fair. And now Catel Marte, who homerred his last time up, still batting on the left side here, takes a slider. It’s low for a ball. One and the count to Marte. The next pitch is outside for ball two. We’re only in the bottom of the third inning. Two balls, no strikes. Dude, Kansas City has 20 runs. They are beating the Toronto Blue Jays 20 to one. Last pitch and that’s taken for ball two. The bottom four hitters have three homers and they have they each have an RBI. and Luca Mey who came on in the pinch hit. It’s two for two with two runs scored and three RBI. It’s insane. Two balls, two strikes. They’ve delivered 14 runs combined. The bottom of the order, 15 actually. Two balls, two strikes, and the next pitch is taken inside for ball three. 20 runs on 27 hits for Toronto or sorry for Kansas City. Kansas City thought about throwing it back over to second base. Max Sherzer started that game. He went just twothirds of an inning and gave up seven earned runs. Tyler Heman gave up 10 earned runs on 13 hits and one and a third of an inning. They put up four runs in the seventh and sixth in the eighth. Next pitch, swinging a miss to Catel Marte and he is down on strikes. I believe that that’s the first strike out for Taiwan Walker. It is. Here’s the pitch to Carol. That’s up high for a ball. One and0 is the count. Carol singled in the first and he scored a run as well. Perdomo leads off over at second base. Walker kicks, fires, and the pitch is up high for ball two. Corbin in his last six games batting 364. He’s four for seven with runners in scoring position. Has four RBI’s and he has stolen three bags. The 200 pitch that is low and inside for ball three. And so the count is now three and 0. Don’t forget to like. Don’t forget to subscribe and turn on the notification bell icons, too. Three balls, no strikes to Corbin Carroll. And the next pitch is up high for ball four. Surprised that nobody is warming up in the bullpen right now for the Phillies. All right, one away, bottom of the third. And up to bat now is Gabriel Marino. What’s the longest that you’ve guys had to wait to go get your food at a restaurant? Because tonight, I don’t think tonight was my longest. I think that the longest that I waited at a restaurant to get food was two and a half hours. That was a really long time. The ball is one strike to Gabriel Marino. The 01 pitch that is up high. Ended up getting uh free food from that which was nice. They allowed us to uh they they actually didn’t charge us for that which was nice. One ball, one strike. And here’s the 1-1. That’s a foul ball after ordering. Yeah. Yeah. Tonight was an hour 40. It was at least an hour 40. And actually my friend uh I I ran into my friend there. He was there with his family and by the time I left they still hadn’t gotten their food. So and he they just popped in like right before I did. One ball, two strikes. We’re in the bottom of the third. There’s one away. Free food is always good. Yes. One-two pitch. There’s a fly ball hit out over towards right center field. Bader gets under it. He’ll make the catch. There’s out number two. The throw is going to be cut off over at second. So, there’s two outs in the bottom of the third. But yeah, he was still his family and him were still waiting for their food by the time I left. Let me see. Did he text me? He said, “Yeah, just cut out.” That’s insane. Two outs, bottom of the third, and runners are at the corners. There’s 15 seconds left on the pitch clock. Walker will get set above the belt. He looks over at first and throws it back to first and it’s not in time. There’s eight seconds left on the pitch clock. And the next pitch, there’s a ground ball back up the middle. It’s played on the bounce though by Wes Wilson as he backhands it. He’ll throw it on over to first. And that’s in time for out number three. And we are going to go to the top of the fourth inning. and we will be right back in just a few moments. Alrighty, be right back. top of the fourth. Brandon Marsh is up and the pitch is fouled over towards the left side. So Nelson is pitching. Nelson has 54 pitches. Phillies are down two to one against the Arizona Diamondbacks in the top of the fourth inning. The 01 is down for a ball. So that makes it one ball, one strike. Nelson, three innings for him, three hits allowed, one earned run and one walk and one strike out. Where was the restaurant? It wasn’t like It wasn’t too far from my house. I don’t want to say the name because again I don’t want to I don’t want to do that. But it wasn’t it was it wasn’t far from it wasn’t far from us. It wasn’t too far. Two balls, one strike, and the pitch that’s in there for strike two. Wait, why’s your text, Steve? Two- two pitch. Ground ball hit over to first base. First baseman has it. Throws it over towards Nelson. And that’s in time as he had to go cover the bag. He didn’t mean to tag you, Steve. He meant to tag Kevin. And now Bow is coming up. wrong person even. It’s It’s okay. It’s funny. First he called First He called my aunt Angelina. Now he calls Kevin Steve. No balls. on strike. Top of the fourth. What a away. That’s one of my best friends, everybody. 01. That’s down in the way for ball one. B did have an RBI double his first time up. Nelson gets set at the belt. He kicks. He fires. And there is a swing and a miss. It’s okay. The one two high bouncer hit over to first base and that’s going to be caught by Tawa and he will just step on the bag for the second out of the inning. Mitchell was actually one of the reasons why I did get on into baseball. Um, I said I said it yesterday, but his fa one of his favorite movies was Angels in the Outfield. Like, he loved that movie. I would actually put on baseball for him and he I I would say, “Mitchell, what are we watching?” He would say, “Baseball.” I’d be like, “Yep, one ball, no strikes.” And the pitch, that ball is popped up over towards the third base side. Alexander is there and he will make the catch. And we’re going to go to the bottom of the fourth inning. And so the Diamondbacks are going to be coming on up to the plate. Two to one is the score. But yes, he liked football, too. He liked the Packers. He he didn’t he didn’t follow football. Like he didn’t know like players, you know, names and all that sort of stuff because it’s just that’s just not like who he was. Um, you know, he had a hard time comprehending that. But he he just he loved watching the game, you know, when it was on until he wanted another movie. All right, we are going to the bottom of the fourth inning. That’s cool. One of my favorite baseball movies as well. Even though I don’t watch movies that much to Scott, it’s a good movie. It really is like it’s it’s a very good message and I don’t know. I feel like that that that there’s definitely really cool moments in that movie, you know, like it has its special moments. It’s more than just baseball, of course, but it’s interesting how it like baseball connects to it. Baseball, that’s a good one, too. All right, we’re going to the bottom of the fourth. two to one Arizona. There’s a Phillies fan that has a note that says, “I’d rather be at CPP.” And I can understand that if she’s uh not from there saying that’s good. Adrien Del Castillo is up and the first pitch and that is taken for a strike. The second pitch is outside for a ball. Where is everybody tapping on in from? How’d you guys find out about my channel one? That’s in there for Strike 2. Did it just show up on your algorithm like when you typed on in Phillies? Do you guys remember that? Maybe you’re not. Maybe you’re like, “No, I just found you.” And I understand that, too. That’s how it happens to me sometimes. I don’t remember exactly how I found people, but if you do, I would just like to know. One ball, two strikes. Somebody actually told me the other day that they found out about me because somebody told them uh about the channel, which I was really really happy to hear. It was so nice. I like it when people spread the word by mouth. One ball, two strikes, and the pitch. And there’s a swing and the miss. There’s out number one. Chase Field doesn’t look too bad. No, but it’s also like to be fair like it’s different watching a game when you are like when you feel like that you’re on the visitor side, you know, like it’s totally different. It’s a different experience than just doing that when you’re at a home ballpark. The ball is one strike. And here’s the 01. There’s a ground ball. It’s hit over towards the left side of the mound. Walker grabs it and he throws it over to first and it is in time to record the second out. Chadford by your friends. That’s right. Fillian, you just popped up in 2023 with live coverage. Let’s go. Two outs, bottom of the fourth, two to one Arizona. And up to bat is Tawa. And he will take strike one. Tim Tawa, 26 years old from Westland, Oregon. The 01 pitch. That’s inside for a ball. So, it’s one ball, one strike, and the next pitch on the way. Ground ball slide and stopped by Bow. He gets up. He throws on over to first, and that’s in time for the third and final out of the inning. It’s time to go to the top of the fifth. It is a two to one ball game and the Phillies are coming back up. Folks, just wanted to remind you guys really quickly um that if you guys still would like to donate, you most certainly can. Um all you got to do is just click on the link that my mods will post down below. And if you donate to that website for the uh to the to the Dautenomia Foundation, um you can send in a donation that way. Uh obviously, you don’t have to send in a donation and any donation is a plus. I just want to throw that out there because I know that our audience does keep changing and people I’m sure like are going to be after the event they’re going to be like, “Well, I didn’t get to donate. I didn’t see it.” So, I have to make sure that I do continue to plug that in. Um, and again, to all the people that did donate, I will most certainly give you guys a big shout out and I will uh write to you and personally write you a a message uh and and personal notes just to thank you all because your contributions are just absolutely incredible. Um, and I I really cannot thank you guys enough. We’ve surpassed our goal uh by a mile and I’m just really proud or it’s my big it’s my this is my proudest moment. It is. It gets me a little bit choked up and it’s awesome. We just got to keep going. You know, it’s by far my proudest moment and we’ll continue to keep going. Content will continue to get better. And yeah, top of the fifth, Wes Wilson will lead things off for Philadelphia. So he’s coming on up to the plate. Phillies are down two to one. Just an RBI double from Alec Balm. Nelson still pitching for the Diamondbacks. He kicks. He deals and Wilson fouls it back towards the screen. Phillies have a 40 and 38 record away from CBP. Olsson is batting 198. He’s 0 for one with a ground out. The 01 pitch. That’s a little bit low for a ball. You were live streaming with someone else and that’s how I found out about you. Uh was it Braves Country? Was it uh Dixon Way one pitch that misses outside for ball two. What’s up, Matthew? How’s the fundrais going? I’m joining in to listen. I had to run off the game of the TV. Uh the game off on the TV getting sleep. The 2-1. That’s a foul ball. So coming on into this stream, we got over 5,500. We’ve raised $5,500. Over $5,500. Um, I won’t get an update until tomorrow, uh, through the website, but I could tell you that over on YouTube on the YouTube side of things, we’ve gotten $32 today in just super chats. Two two pitch, ground ball hit over to third base. And the throw on over to first is in plenty of time. And Wes Wilson is retired. And now Stat is coming on up to the plate. We crushed our goal over 5,500. Yeah, we did. One ball, no strikes. We’re in the top of the fifth. There’s one out. Scott is in the box. There’s 3 seconds left on the pitch clock. And here’s the 10 delivery. That’s a strike throwing at 94 miles per hour. Bradley, what’s up, Bradley? Uh JJ, I tried finding a Phillies game and you showed up. I would give everything to keep you online. My wife and I love you. Prayers to you and the fundraiser. We love you. I love you guys, too. I I I mean that. You guys are my second family. Freak Nation is a a big family of mine. So they’ll always you guys will always be really close to me. A one ball, two strikes in the top of the fifth. One out and the pitch is up high for ball two. Can’t remember when I found JJ, but I’m so glad I did. Says Scott. Two balls, two strikes. There’s three seconds left on the pitch clock. And the next pitch is grounded over to shortstop. Picked up by Purdomo. the throw over to first takes a skip right over to Tawa and that’s in time for the second out of the inning. Absolutely. I was looking for a Phillies game and poof. I know you didn’t say poof. Came across JJ halftime and Jay. Does Jay still doing the Phillies games? I don’t know. Couldn’t do the other one, so you won out. Been with you ever since. Here’s the pitch debater. There’s a fly ball hit out over towards left field and that ball is gone. [Music] [Applause] [Music] [Music] We’re tied two to two. [Music] [Music] Let’s go. [Music] [Applause] [Music] Now it’s Kyle Schwarber coming on up to the plate. And the first pitch that Kyle takes is in there for strike one. It was at the knees on the outside corner. Really loved that swing by Bader. I think I said that he was going to hit a home run today. I got that one correct. Who was the other guy? I said Kepler. I think it was Kepler. the pitch. That’s down for a ball. So, it’s one ball, one strike. Bader ties it up on a solo shot out to left field. That’s Bader’s 17th bomb of the season. Kyle 0 for two. The one-1 pitch to Kyle Schwarber swinging a miss. That was a cutter. JJ, I saw where $500 got donated to. That was awesome. Yeah, on on YouTube. That was incredible. I’m still processing that. Still processing that. THR 33 step. And everybody, like I don’t want to just single out one person. Every single one of you. Like I I can’t believe it. The one two pitch is down for ball two. the two two pitch to Kyle Schwarber. That’s down and in for ball three. Even like it doesn’t matter how much either. Like you guys just being here means more than words to me. Like because you’re spending you’re spending like gosh, some of y’all are spending like 15 17 hours on here just to support this 32. That’s a foul ball. That one goes out of play. A thanks, Bradley. Three balls, two strikes, and here’s the next pitch. And that is just outside for ball four. And Shber will walk his way on over to first base. And now Bryce Harper is due on up at the plate. All right, chat. Let’s go. [Music] Let’s get going. [Music] Charge comes Harper and the first pitch to Bryce. It’s a foul ball. Hit back over towards the screen. Sonic, thank you very much. Thank you so so much. Harper walked back in the 30s 0 for one. There’s 10 seconds left on the pitch clock. By the way, Nelson gets set at the belt and the pitch is up high and inside for ball one. So, it’s a one ball, one strike count. Uh Stephen, what’s up? Stephen Stephen Hoffman, what’s going on, dude? Haven’t seen you on here in a while. One ball went straight to Bryce Harper. And here’s the next pitch. And there’s a swing and a miss. Shante. Wow. Thank you so much. Hey JJ, I wanted to give another donation to you and in honor of your brother Mitchell. A shout out to Shante, man. One ball, two strikes. That’s so nice. One, two to Harper. Line drive, base it out to right field. And so there’s going to be runners on over at first and third as Schwarber does go on over to third. And so the Phillies have runners at the corners with two outs. And Shante [Applause] [Music] Love you very much, Dante. Very, very much. Love I I love you all. That’s super kind. So, wow. Just on YouTube alone today, I I need to I need to do these calculations. Uh, we have raised a total of what is that? 25 30 32. We’ve raised $62 on YouTube today. That is incredible. Wow. Thank you so much. Uh, Stephen, going back to your comment really quickly. I found you while on the road camping for Philly scores. My wife always wants to listen to you. A, she thinks that you’re a really, really sweet guy. Currently in Arkansas. You obviously loved your brother for sure. Well, you you tell your wife that I tell her uh that I that I say hello and I thank her for uh all her support and of course of course your support too. But I I hope all is well and you tell her I love her too and I appreciate her for coming on here. No balls, one strike to JT Rialamuto and the 01. That ball is grounded foul and so the count is 0 and two. Shante, thank you so much. Let me hit that thumb. Let me hit that heart button. No balls, two strikes to JT Rialamuto. And the O2 pitch is flyed foul and out of play. It’s still scrolling. I want to hit that heart button. I do. All right. Keep scrolling. Keep scrolling. Keep scrolling. Keep scrolling. No balls, two strikes to JT Riyamuto. The O2 pitch. And so that ball is taken up high for a ball. One ball, two strikes. So Riyam Muto is 0 for two. Phillies have the go-ahead run over at third. One-two pitch to JT. That’s a foul ball. And it will go on out of play. The best Philly YouTuber. Let’s go. What’s up, David? What’s going on, David? David Ruiz. Shout out to you. One ball, two strikes. Nelson is still pitching. 91 pitches for him. Ryan Nelson. And the one two delivery is outside for ball two. All right, we got to get going, chat. Time to get going. Time to lock in. Charge. [Music] Two balls, two strikes. Schwarber at third, J Harper at first. And the next pitch to JT is a foul ball that will go on out of play. A seven pitch at bat to JT Rial. The right side is wide open in between first and second. Another pitch and another foul ball. That time it was high, but JT tried to tried to protect And he did. Getting all misty here. I lost my little brother way too early. Glad that we could help, says Stephen. A two- two pitch. There’s a ground ball. It’s over towards second base and Harper is out and the inning is over. So Harper was at first and uh Fielder’s choice, unassisted Fielder’s choice does end the inning. We’re going to go to the bottom of the fifth. All tied up two to two. We’ll take a quick step off. Be right back. bottom of the fifth and the pitch is taken on the upper third of the zone for strike one. You know, one of my biggest fears when I’m streaming on here is that I’m going to for get to switch my scene and I’m just going to be calling the game and people are going to be like, “Yo, you didn’t change your scene. Where are you? you know, and I’m like not not even like looking at that. That’s one of my biggest fears. The ball is two strikes. The Jake McCarthy and the O2 is a foul ball. That’s never happened to me before and it probably is going to happen to me tomorrow or within like the next two days because I’ve said something right now which was stupid of me to do. But I don’t know why it just made me think about that. The ball’s two strikes in the pitch. That’s a foul ball. JJ, you’re not live. Yes, I am. Oh, wait. I’m in I’m in my break scene. God damn it. The ball’s two strikes to Jake McCarthy. And here’s the O2 swinging a miss. And there is one strike out here in the bottom of the fifth inning. So, Taiwan Walker’s night is done, but Walker Buer is now in for Philadelphia. So, one Walker out, the other Walker in. Heraldo Purdomo is up and he takes strike one just on the inside corner and he will now call for time. So it’s no balls, one strike. Purdomo doubled in the third and he is one for two. Buer comes set and delivers. And the ball is popped up. It’s hit out over towards the third base side. That’s going to be caught for out number two as Bow is there to make the grab. Yes. Walker didn’t do that bad. So that’s good. Yeah, Walker eight innings today. And when Walker does eight innings, that’s that’s very nice. That’s very good. Marte looks at strike one. No balls, one strike. Marte did have a solo shot in the first. There’s the 01 pitch. And there’s a high-fly ball hit out over towards deep center field. And that ball is going to hit off the top of the wall. And uh Marte will head on over to second base. And he gets on with a double. That thing was over the yellow line towards that straight center or towards straightaway center field. That would have been a home run, but it didn’t have the height there. I don’t really like that wall out in center. I mean, I know that nobody really asked, but it’s just it’s just a wall that’s there, and if it goes on over the line, it’s gone. It’s 407 ft. The pitch, that’s a fast ball at 95. But then I guess if you’re keeping track of distance by hand, it’s probably helpful if there is such a thing. No balls, two strikes. Buer pitching, by the way, for Philadelphia. His erra stands at a 5.26. He has an 8 and seven record. is now 31 years old, 6’2 in tall, 185 lbs, right-handed pitcher. The O2 on the way, swinging a miss. And so we go to the top of the sixth inning. We’ll be back once again in just a few moments. Jaylen Beaks is going to go out there to pitch for Arizona and Brandon Marsh comes on up to the plate and he takes ball one is down and away for a ball. So, it is one ball, no strikes. And the next pitch is way up high for ball two. That was a four seamer. We’re at 92 miles per hour. Two balls, no strikes to Brandon Marsh. He singled in the second and also scored a run. Thank you so much. Pizza has delivered. Thank you so much. The two. Thank you so much, man. The pitch. There’s a ground ball hit over towards the right side and through for a base hit. And so a leadoff single here in the top of the six. Let’s go. Thanks so much, buddy. You’re the best. He’s awesome. Oh, man. It looked really good. It did. Top of the six. There’s a runner on over at first and the pitch net is up high for a ball to Al Balm. BM did have an RBI double back in the second. It’s hot. It’s definitely hot for sure. Two balls, no strikes. We’re in the top of the sixth. There’s a runner on over at first. Beaks on the mound. No tip. Oh, trust me. I’m I’m going to tip him. Well, trust me. The 20. And that is up high and inside for ball 30. I take care of the people that are that are helping me. I do the three 0 pitch that’s in there for strike one. Alex says, “Now I want pizza.” See, this is nice because now it’s sort of reverse order because usually like you guys will tell me, “Oh, well, I’m eating pizza right now or I just got Chinese right now.” And I’m like, well, I can’t eat right now. I’m on stream. I can’t just leave. So, it works the I guess it goes the opposite way in this case. The 3-2. There’s a fly ball. It’s head out over towards center field. That’s going to be tracked down by Thomas and he will make the catch for out number one here in the top of the sixth. So there’s one away. But yes, and now up to bat will be uh Nick Castillianos. He will come on in to pinch hit for Philadelphia. So, one out here in the top of the sixth. Casty is eight for 22 in his career as a pinch hitter, batting 364. The right side is wide open. First pitch, fast ball down the middle, swung on and missed. Nelson’s day is done. Five innings, five hits, two earned runs, two walks, and one strikeout. Here’s the 01 delivery. And that’s taken on the outside corner for strike two. She’s stay. That’s That’s a That’s what you had. Nice. The O2. And that’s a pie for a ball. So, it’s now one ball, two strikes. with one out here in the top of the sixth. Best pizza place that you guys have gone to or have ordered from. One, two. That’s a foul ball. It’s still pretty hot. It ain’t ready yet to be consumed. The Braves won 10 to1 against the Tigers. Wow. One out. Top of the sixth. And the pitch to Nick Castanos. And that is down for ball two. So, it’s two balls, two strikes, and the next pitch is way up high for ball three. And now the count is full. Three balls, two strikes. Phillies are tied two to two. How do we get here, JJ? Very, very good question. Um, for the Philadelphia Phillies, Harrison Bader hit a solo homer and Al Balm also had an RBI double. Uh, Catel Marte also hit a solo homer and Bla1 Alexander had an RBI fieldielder’s choice. Was actually originally ruled as an inning ending double play. That was back in the in the first inning. And uh then the call got overturned cuz uh Alexander beat out the throw. 3-2 pitch. And that’s a called strike three right at the knees. It looked a little bit low. And Brandon Marsh is over at second base. So there are two outs. Let’s look again. That was a little bit low it looked like and then the catcher of course Marino brought it back up. He did. There are two outs. Marino got into a standing position to try to throw it on over to second base and no throw was made and Marsh was able to swipe second. So, he gets credited for a stolen base there. It’s a pitching change coming on up as Wes Wilson will come on in for Philadelphia. They’ll come on up to the plate and a pitching change will be made. All right, I think it’s time to dig on in. I do. I think it’s time to dig in. Let’s go, chat. That’s good. Not bad. It’s It’s It’s definitely good. It’s really good. I really like it. Drop the pizza emotes in the chat. It’s so cute. All right. All right. We are still in the top of the sixth inning. There are two away and also Marsh is at second. Wilson is up and on the mound is Rashi. And the first pitch that’s thrown is up high. Taylor Rashi with a 5.06 erra and 10 innings of work. 13 strikeouts, five walks allowed. The 10 delivery to West Wilson is up high for ball two. And so the count is 2 and 0. Bader’s two for three. Marsh is two for three. Bow one for three. Harper one for two. Those are all the standouts on offense. Also, Bow one for three. I don’t know if I mentioned that. Had an RBI. Next pitch. Net’s taken for strike one. What’s up, Hogy man? What’s up, Ian? How are you? Two-1 pitch. There’s a line drive. Base it out to left field. Marsh is rounding third. He’s being waved home and the throw is cut off and the Phillies go up three-2. [Applause] [Music] Marsh was running for his life as he rounded third and no throw made it over to the plate and Wilson makes up as he got robbed on a play that was similar before but that time Purdomo couldn’t get to it. [Music] So now it’s Bryson Stad who’s up at the plate. Three to two. The pitch is up high. The throw to second base to get Wilson. Not in time. He is in there safely. Just got his left hand in there. Beromo tried to swipe him on the hand. No, he did not get him. The helmet is off. Let’s see again. Just looking at the replay, he had didn’t even have a mitt on. Did he get him on the elbow? I don’t think he did. But Arizona is challenging the call. They will challenge the call to see if Wilson is out at second base. Lava is pointing around. Like he didn’t get his hand in there. It’s a little bit hard to tell from that angle. That’s the angle where you see the back of the elbow. Maybe they can give us a a side view here. I don’t think that this will help either. Nope. They’re going to have to get the front side of right where the left elbow is. This one, this could be the telling angle. No, it’s hard cuz also Pommo’s cleat was in the way. I think he got him. And so the call was overturned and Wes Wilson is out at second base. Huh. And we’re going to go to the bottom of the sixth inning. However, the good news is that the Phillies do have a three-2 lead against the Arizona Diamondbacks. So, bottom of the six coming on up. Uh guys, I just wanted to remind you all uh we are still doing our fundraising stream uh for Familia in honor of my brother. Uh for those of you that don’t know, I had an older brother. His name was Mitchell. Um and he passed away 5 years ago. And I wanted to do my very first fundraising stream in honor of him. And so we were live for 17 hours yesterday. During the very first part of the stream, uh we talked all about Mitchell. We talked about what it what it’s like having FD uh familiar with the suddenia. That was his uh disorder uh his his diagnosis uh when he was uh very very young. Um but yes uh I think it was really well done. I do. But uh but yeah, I don’t know. I’m pausing. I think it’s time to eat. So good. I moved to Pittsburgh area and I crave it every time I have pizza. Look at those pizza emojis. You are human, JJ. Yeah, I guess so. All right, pitch number one. There’s a fly ball hit out over towards right center field. That’s going to be caught by Harrison Bader for out number one. So, Gabriel Marino flyed out over to right center and he is out. And Blaze Alexander is coming on up to the plate. He’s 0 for two with a fielder’s choice and an RBI as well. Buer still pitching. Came on in for Taiwan Walker. The ball is one strike. Doug, thanks so much for the $10 super chat, man. Thank you so so much, dude. [Applause] [Music] Wow. The ball is two strikes. There’s one out here in the bottom of the sixth in the O2 and that is outside for a ball. Wow. Excuse me. We’ve raised $72 in just super chats tonight um for this. This is incredible. Thank you so so much. Here’s the pitch. There’s a ground ball. It’s hit over to shortstop as Scott will field it and he picks it up and he will throw it on over to first base in time for the second out of the inning. Um what other games are still on? Are the Orioles playing or are they done? I think that they’re done, right? Yeah, the Orioles won. So, they beat the Yankees. The Yankees are done. Okay. Marlins and Rangers are in the top of the 12th. Wow. One ball, no strikes to Adrien Del Castillo. The one pitch is taken low for ball two. chat. We should go uh we should definitely go raid somebody after this we should three balls no strikes to Adrien Del Castillo viewer before this at bat had not thrown a ball 17 pitches without a ball and the pitch there’s a foul ball meaning a chocolate muffin. I thought I was going to say I’m eating chocolate milk. I’m like, wait, do you mean drinking? Baseball is sucked today. Oh, betting wise, Wolf Eyes, I’m I’m sure that you mean betting wise. 3-1 ground ball hit over towards the first base side. It’s scooped up by Harper. And the inning is indeed over. And we are going to go to the top of the seventh inning. It is 3 to2 Philadelphia. All right. Um, where can I send you guys to? I want us to go say hi to somebody. I do. I want us to go say hi to somebody. Let’s go say hi to Philly halftime. All right, we’ll go say hi to Philly halftime and uh give him some love because he absolutely does deserve that. All right, let’s go say hi to Philly halftime. Here he is. Uh, go tell him that I said hi. Bye. All right, one ball, one strike to Bryson Scott. And here’s the next pitch. That’s a fast ball that’s taken at the knees for strike two. Doug, I don’t know why the the uh the I don’t know why the message didn’t show up, but uh your message was funny. video game controller evolves into a muscled version of itself under the word LVL plus. Huh. It’s interesting. Two balls, two strikes. We’re in the top of the seventh and is up and the two two pitch that is low for ball three. And so the count is now full at three and two. Rashi is still pitching for the Diamondbacks. Came on in relief and the 3-2 pitch on the way. Swinging a miss. And there is out number one. So one gone here in the top of the seventh. Okay. Ryzen Rhino is alive. That’s cool. We got 140 likes, 218 people watching. And again, I want to thank you all so much for those of you that have been contributing to uh the familiar theomia foundation fundraiser. Um if you guys have not donated, Jven News did just post the link down below. Uh you can donate through the website. You can donate through YouTube too. But if you donate through the website, uh you will send over the the the foundation is actually going to double the uh total amount which is absolutely awesome. It’s one ball, two strikes to Harrison Bader. One away, top of the seventh. Rashi kicks and fires and the next pitch is a foul ball. Bader homerred his last time up and that’s how the Phillies were able to tie the game at the time two to two. One two Bader and he lines this one over the glove of Bla1 Alexander and he will stay put over at first. He thought about going over to second, but he pumped the brakes and he gets on with a single over at first with one away. That pitch was going towards that inside corner and it just went over the glove of Alexander as he tried to make the play there on a leaping. He tried to leap on up. Tory Lavulo is going to make a move. And that is going to be it for Rashi. So his night is done. And up next will be Kyle Schwarber at the plate. Blue Jays had 20 put on them. Are they already resting their players for the playoffs? Yeah, dude. 21 21 runs. Now, to be fair, okay, like you have to also understand too that they had a position player out there who gave up 10 earned runs. So, I mean, but still, like 11 runs before that, that’s insane, you know? Like, I’m not saying that they shouldn’t count those extra 10 runs, but you just got to put that into perspective, too. It would feel really different. It would imagine if this if they went to like their top pitchers and then they got 20 runs that way. That would suck. That would suck. That’d be so bad. That’d be terrible. Colton is here. What’s up, Colton? What is the baseball equivalent of the tush push? And how can we get it Philly branded, says Sonic? Uh, are you saying uh the baseball equivalent of the tush push? There is none. There really is none. I would say like what? Because you’d have to think about something that’s controversial, but it would work. There is nothing that the Phillies do that is controversial. You know, like the tush push is controversial. There’s people that like it, there’s people that don’t. You know, that’s really hard. I don’t think you can make a comparison. But maybe I could be wrong, chat. Am I wrong? Philip Abner is going to go out there to pitch for the Snakes and Schwber takes strike one. That’s on the outside corner. The ball is one strike. Kyle is 0 for two. He walked in the fifth. The 01 pitch that is inside for a ball. One ball, one strike to Kyle Schwarber. And the next pitch on the way, swinging a miss. It was a fast ball that was up high. Schwarber is tied with Matt Olsen for the single season highest amount of home runs against left-handed pitching and Stan Musio as well. All three of them, well, two of them had 22 in their season. Olsson’s was 2021. I forget when they said that stands was two balls, two strikes to Kyle Schworber. Bader does lead off over at first. Kyle is 0 for two. Abner comes set and fires and Shrober goes around on the pitch that was high. He did check his swing and there was no need to appeal. There’s now two gone in the top of the seventh. Yeah, that was not good. The balls went straight to Bryce Harper. And so the count is 01 to one. Next pitch, there’s a line drive base it out to right field. And so Harper does get on with a single and that will put Ber over at third base. [Music] Wow. All right. So, the Phillies do have themselves a two out rally. Charge. Two outs here in the top of the seventh. And here’s the pitch. Net is inside for ball one. One ball, no strikes. There’s 5 seconds left on the pitch clock. There’s the one pitch that is taken inside for ball two. The 200 pitch that is high for ball three to JT. All right, so it’s three balls, no strikes. Phillies do have a three to2 lead. We’re in the top of the seventh. Jake Woodford is warming up in the Diamondbacks bullpen. toss back over to first is not in time. Three balls, no strikes. Abner comes set above the belt and the three 0 and that’s high for ball four. Base is loaded for Philadelphia. [Music] Let’s go. Let’s go. Get some runs in. We have a timeout taken on the mount. [Music] [Applause] This is Philip Aer. He’s making his debut with the Diamondbacks. [Music] Go [Applause] [Music] JJ also just submitted his $15 to the website. Shante, thank you so so much. Wow, man. So that’s like that’s donating 60. Wow. Thank you so much, Shante. Really? [Applause] Love you guys. You guys are so awesome. All right, bases juice. Top of the seventh. Marsh is up at the plate. And the first pitch that he takes is just off the plate for ball one. One and O is the count. The one delivery. There’s a strike. One ball, one strike to Brandon Marsh. So the Diamondbacks called up Philip Abner. They called him up yesterday and he is making his major league debut. One to Marsh that is down in the way for ball two and that will make it now a two ball one strike count. 5 seconds left on the pitch clock and the 2-1 delivery is in there for strike two. Abner played for the uh Florida Gator when he was in college. He’s born in Charlotte, North Carolina. Two balls, two strikes. Time will be called. Umpire was going over there to see if there was an issue with his calm. There was some issues, but I think Abner says that he’s Nope. He’s getting a new device. checking it out. Now, I’m hoping that that they can limit these issues because these types of technicalities, it’s not like that they just happen every once in a while. I’m really just hoping that they can try to to get rid of that, but I understand that it’s not so easy to do so. Base is loaded for Philadelphia. JT’s over at first. Harper’s at second. Bader is at third. It’s two balls, two strikes. A huge pitch here to Brandon Marsh. Abner kicks, fires, and a cold strike. Three at the knees on the outside corner. And Abner, well, makes his debut and ends up striking out Brandon Marsh. and we will go to the bottom of the seventh inning out in Arizona at Chase Field. It is trivia time. I am going to ask you a Phillies trivia question and if you get it right, you will hear this. If you get it wrong, you will hear this. All right, I want you guys to name me. So, we’ve been talking about Kyle Schwber and how many homers that he’s hit off of left-handed pitching. I want you guys to name me um one of the top five Phillies players of all time who has the most uh career homers against left-handed pitching. We’re going to go top five. They are another delay. I made it back for trivia and also to watch me eat some more pizza. Schmidt. There’s one. Howard is two. Howard is two. Chooch. Utley is four. Schwarber. He just got there. Kyle Schwber just got there and he beat out Jimmy Rollins. So that’s incorrect. We’re missing one more. So we got Schmidt, Howard, Utley, and Schwarber. And to put it to you this way, Mike Schmidt’s number one, Howard’s number two, Schwarber’s number five, and Utley is number four. Not Lzinski. It’s not Lzinski. It’s not Crook. Pat Burl. Yes. Mike Schmidt had 133 homers against lefties. Ryan Howard had 91. Burl had 71. Utley had 68. Kyle Schwarber 59. Rollins 58. And Harper 53. the one pitch and there is a pop-up hit out over towards shallow left field. Scott is there and he’ll make the catch. Uh eighth is Jason Worth. Worth has hit 41 homers against lefties. And number nine is Reese Hoskins. Reese Hoskins hit 40 against lefties. And tied for 10th, Vtorino and Lzinski. 39 39 No balls, one strike. Walker Buer pitching. Tawa is at the plate. Yeah. And the next pitch, it’s a foul ball. So it’s Schmidton and everybody else. Can you believe that Greg Lazinski though is tied like with Shane Verino, one ball, two strikes, one out, bottom of the seventh. Now, what’s even more interesting, if you’re interested in this, uh, one second, wanted to look this up. I had this up before. Two balls, two strikes in the bottom of the seventh. Schwber is not in the top five against lefties, which I think is funny, but I guess it makes sense. The 2-2 and that’s a foul ball. So Schmidt has hit 396 against righties. This is the top five against right-handed pitching. 396 homers against righties. Howard 291 against righties. Burl with 180, Bobby Abrau with 173, and Chase Sutley with 165. Harper and Schwarber. Harper has 126. Schwarber has 125. Lzinski is 134. Rollins does have 158. And Scott Roland is 10th with 113. Three balls, two strikes, by the way. And the 3-2 pitch on the way on the outside corner for a called strike three. There’s two outs in the bottom of the seventh. That was a good pitch thrown. Really nice pitch. So, Tawa just struck out looking and Lazinski could not run like the flying Hawaiian. Next pitch, there’s a fly ball hit out over towards shallow left center field. Bader comes running on in and he will make the catch on the run and he will run back over towards the Phillies dugout as Walker Buer does his job. And we’re going to go to the top of the eighth inning. 3-2 Philadelphia. Wasinski was way better than we remember now. I had his poster in my room between Schmidt and Carlton, says Sonic the Eagles fan. Righties like Lzinski and Burl would have more uh versus lefties. Where was Ralph Ker at against righties? Ralph Ker not even in the top 25. Not even in the top 25 against righties. Mel Franco’s in the top 18. Odupo Herrera is in the top 20. He’s in front of Nick Castillianos. Isn’t that sad? Odupo Herrera has hit more homers against right-handed pitching than Nick Castanos. 66 for Odupo Herrera and 56 for Castillianos. Huh. Shane Vitino had 49 against uh against righties, but I guess that that kind of does make sense. Yeah, Kinder never played for Philadelphia. That’s correct. Toé has 74 against righties, which is one more than Juan and uh Mel. Okay. Against righties, sorry. Top of the eighth. Bulma is up at the plate and the pitch. There’s a ground ball. It’s it over to third base and it’s off the glove of Alexander. It goes out to shallow left field. And so B is aboard and he is over at first base. [Music] Phillies have three runs, nine hits. They are leaving way too many men on base. Let’s go. Let’s go. Uncle Gabe and Ashley. I have two friends that are friends with each other. One of them is here. His name is Gabe and he’s really close to somebody named Ashley. I’m close with her, too. She’s awesome. The pitch. That ball is fouled. No balls, one strike. So, they do call it an E5. And Nick Castian is up. No balls, one strike to Castianos. Cassi did come on in the pinch hit for Max Kepler. I had him go yard today. That was But I also had Beer going yard and that was correct. All right, one ball, one strike to Nick Castillianos. The one-1 delivery that is just inside for ball two. Woodford pitching for the Arizona Diamondbacks. A 5.77 earned run average this year and 20 strikeouts for him. He has actually given up five earned runs in his last two outings. Two-1 pitch. There’s a foul ball and it’ll find the seats. [Music] George, that was bad. By the way, the Dodgers are down five or or actually sorry, they are leading at five to2 in the bottom of the fifth against the Giants. Two balls, two strikes to Nick Castanos. And the next pitch on the way and that ball is fouled off the mask of the catcher. Count is two and two. Two balls, two strikes, and the next pitch. There’s a fly ball. This one’s hit out to deep left field. It’s going back towards the track, and it is gone. Nick Castillos with a tworun home run and he adds on to the Phillies lead five-2 [Music] was talking about how Cassie didn’t have as many homers against right in pitching and well bad timing on my end I Yes. [Music] Wow. [Music] Okay. [Music] Must have heard me. That was his 250th career homer, man. 52 Phillies. Top of the eighth and the 01 pitch. And that’s inside for a ball. You must have heard me, man. One ball, one strike. Was that the reverse jinx? I guess so. Well, he only needs nine more to tie him. 2-1. That’s a foul ball. And that one will go out of play. So that makes it now two balls, two strikes. Five to2 Phillies. We have 278 people watching. 153 likes. Hit that thumbs up button. Next pitch outside and low for ball three. Count is full. Three balls, two strikes to Wes Wilson. And the next pitch, there’s a called strike three at the knees. And there is out number one. Here comes Scott and he sends one out to right field. It’s looking foul and it will go out of play. They say you should never talk with food in your mouth. I just did. Probably should not have done that. 01. There’s a swing and a miss. And so the count is now 0 and two. That pitch was a little bit low. Phillies do lead to a 5-2 here in the top of the eighth inning. They were up three to two. And Nick Castiano hit a two-run home run. Nothing. And two is the count and the pitch. And that is taken for ball one. Nick said, “I’ll show JJ.” So funny. Woodford on the mound for Arizona and the one-two pitch. swinging a miss to Bryson Sto and he goes down on strikes. He’s now 0 for four. That’s the second strike out from Woodford. Again, guys, if you do still want to donate to the Familiar Datonomia Foundation, um you most certainly can. I did a 17-hour fundraising stream yesterday and I extended the stream into today. Um during the first three hours of the stream, I replayed everything that we talked about yesterday. Um, and you can go check that out on your own time if you guys would like to. All you got to do is just go back. I will also up update or upload a VOD um that has the whole thing of the interview that I did with Laney. I’ll have that in one VOD. I’ll have uh Laney is the director of the Disotenomia Foundation. The ball is one strike and the next pitch is swung on and missed. By the way, Bader is on cycle alert. He’s three for four. Needs the triple. Uh but if you want to donate uh to the website, you most certainly can. My mods will drop that link down below. You can donate to the website and they will actually double the offer. Uh or they will double the total. Double the total. That is next pitch. And there’s a swing and a miss and the inning is over. But Nick Castianos does go yard with a two-run shot. We’re going to go to the bottom of the eighth inning. We’re going to take a quick step off and we’ll be right back. Bottom of the eighth inning, 5 to2 Phillies. Purdomo is up at the plate. And the one is taken down for ball, too. Alo, thank you so much, man. Just wanted to say that I’m really proud of my guy JJ. Uh, what a great thing that you did in honor of your brother. Mad props to a great guy. I love you, my guy. I love you, too, man. Shout out to you. really gh thank you so so much and thank you for spreading the word man like you really you really pushed and and and you you you reached out to people on socials and I I really thank you for doing that two balls one strike and the next pitch and that ball is fouled away and so the count is now two balls two strikes we really crushed our goal I’m I said this before I will say it again this is my proudest moment moment I’ve ever had on YouTube. Um, it’s it doesn’t it’s not a game, you know, like everybody’s going to say like, “What was your proudest moment here on YouTube?” Like calling, you know, was it calling a game? No, it was not. Was doing this by far. Two balls, two strikes, bottom of the eighth. And I’m I’m actually really happy I didn’t do it during the playoffs. I figured like now was a really good time to do it because during the playoffs like that that that’s, you know, this during this time we could really focus on it, you know, like we don’t have any other distractions. We can just focus on this and that’s really what I wanted. I wanted to make this a big big focus, you know. 3-2. That ball is popped up out over towards the right side and Wilson is there and he’ll make the catch for out number one. Uh Stanton 449, Schwber 337, Harper 363, Judge 363, JJ and Chad, who do you think will get to 500 home runs? Um, Judge Will. Uh, I think J I’d like to say Judge Will. That’s pitch. That is outside for ball two. Oh man, that’s tough. I don’t think Otani will. The one pitch that is down for ball two. Man, who will get to 500 home runs? I don’t think Schwber will. I don’t think he will. Two a pitch on the way and there’s a strike called. Two and one is the count. That’s a tough one. Two balls, one strike in the next pitch. And there is a line drive base it out to center field. Harrison Bader does get over to it. I do think Judge will now that I think about it. I do. Judge is 32 years old, right? Judge is 32 years old. I want to say he’s 33. Next pitch and that’s inside for a ball. I could see him getting to that means that he would have to average like 40 homers at the very least over the next like three four years or three years really. One ball, one strike. Really wanted to thank you for that. One ball, one strike here in the bottom of the eighth inning. Buer still pitching. This time it’s to Corbin Carroll and the pitch is inside for ball two. So that makes it now a two ball, one strike count. It’s a good question. and Matthew, that’s correct. That’s correct. Congratulations, by the way. Um, just had a newborn in June. That’s that’s incredible. Next pitch, there’s a fly ball hit that over towards right field and that’s going to be caught. Uh, definitely no pressure to anybody to donate, but if you can, feel free to do so. So, two outs in the bottom of the eighth inning. There’s 8 seconds left on the pitch clock and the next pitch is in there for strike one to Gabriel Marino and the count is 0 and one. Even when I’m not having the best two months after losing my dog, I wanted to do something good. Good. I’m glad I got to help out JJ. Thank you. Means more than words. I know that I I I know that you miss Ralphie. He seemed like he was a good dog. But thank you very very much. Two balls, one strike to Gabriel Marino and the 2-1 and that ball is fouled over towards the right side. Yeah, I’m I’m Yeah, I say prayers for you every night. I really do. Two balls, two strikes, and the next pitch is up high and inside for ball three. Marino did have to uh get out of the way of that. JJ Judge is 33. I don’t know like who else would get to that amount like what’s Juan Sodto at? and he’s only 261. So 3-2 on the way and that’s outside for ball four. And so there are two outs here in the bottom of the eighth inning. And that’ll put two runners over at first and second. I’m trying to see um what Juan Sodto is at right now. So if we go to the Mets team, we go to their stat leaders, we go to Pet or not Pete Alonzo, Juan Sodto. Kale Cam is going to go out there by the way. Sodo’s at 242. So Juan Sodto, because he came into the league when he was 19, he already has 242 homers. If he plays for like another 10 years, I could see him doing it. He could average 25 homers for 10 years at the very least. That really would not surprise me. It would surprise me if he averaged 25 for the next 10 years. So, I would I would I’d say Juan Sodto has a chance. It might be too soon to tell, but in my opinion, I think he can do it. Two outs here in the bottom of the eighth and Alexander is now up. And he’s the tying run. And the pitch is up high and inside for a ball. The one thing in in life my mother ever wanted was to go to a Philly’s game when CO hit. I want to bring her ashes to a game in memory of here and would love to meet and greet with you. Well, we’re going to make that happen next year. I said that we were going to do it this year, but you know what? We are going to do it next year. I am trying to uh I really would like to get that set up for next year for the summertime. We’ll make it happen. I wanted to make this thing happen for this year. Now, if I can make this happen, I can make that happen, too. Two balls, one strike, and a pitch on the way. And that’s inside for ball three. I think that that’s what we’ll do. That’s pitch. And that’s a foul ball. Did I see that right? 5500 raised. Yep. That’s coming on into today, man. Congrats, man. Love seeing Mitchell’s memory live on. Thank you, man. Thank you so much, Alex. I appreciate you. Yep. We’ve did it within 23 hours of streaming. 3-2 pitch. Foul ball. That will go on out of play. So, the count is full. Buer with 59 pitches. The payoff pitch. That’s outside and the bases are loaded. Oh, boy. Time to lock in, chat. It is time to lock in. Base is juiced. Bottom of the eighth and we have a timeout taken on the mound here. Rob Thompson is actually going to make a move and he will go to his bullpen. Let’s see who they’re going to go to here. It’ll be Tanner Banks. Tanner Banks will come on in to face Adrien Del Castillo. They saved the lefty for the lefty and we’ll see how that goes. Uh Walker Buer so far has been so impressive for us. Yeah, I would say that he’s been more than I’ve asked. I do. I I think that he’s done better here. I don’t I don’t know if it’s just sometimes a change of scenery and players will tell you this sometimes that really does help them when you’re around different people that are that are coaches or even just players. you just uh you know sometimes that does make players thrive and I do wonder if the same thing goes with Harrison Bader you know like Bader was not having as he’s been so good as a Phillies player he’s he’s been so good in the uniform really and you have to think that a change of scenery has helped and even as he’s been in the leadoff spot It’s just doing better and better. That has to boost your confidence, you know. Dude, something was stuck in my mouth. A piece of pizza, of course, was stuck in my mouth for a while. I I was I was moving the tongue for a little bit as I was talking. I’m like, “All right, it’s going to come down at some point. It’s going, you know, I’m going to get it. I’m gonna get it at some point. And I finally got it. Man, it feels good. Yes. Just wait for Camro’s 500 home run chase. There was something else there, too. I just got that as well. Uh, thanks for your concern. Bottom of the eighth, base is loaded. Tanner Banks is out there pitching for Philadelphia. And Lawler is coming on up and he will pinch it for Adrien Del Castillo. the pitch that is taken way inside for ball one. Now the Dodgers do lead at six to two. Just got to take care of their own business. That’s it. One pitch. That ball’s popped up. It’s skyed over towards the left side of the mound. Who’s going to get there? It’ll be Bryson Scott as the wind brought it back towards the mound and he caught it. And there is out number three. Banks comes in to face one batter and even though that wasn’t the batter he was supposed to face, well, ends up getting the out anyways. And we’re going to go to the top of the ninth. Five-2 Philadelphia. Uh, what else is going on, chat? This is sending me good vibes since the Rays got eliminated officially from the playoffs today. Yeah, man. It was a very It must have been a Must have been a heck of a weird season for them. I mean, just like even just from the start, of course, you know, like they’ve had a very weird season, just a very odd, strange one. The Google machine. the machine. I’m laughing because I don’t know why it makes me think about like the scene in Willy Wonka when they have like the old computers and uh they like write out the messages about the chocolate. I can’t really fully like remember like what ended up happening and that’s you know I just remember was that it was really funny and they would uh the guy would like send messages to the computer and it would write out messages that were that that made the guy look bad. I don’t know why it just made me think of that. The Google machine says that the top five prospects for 500 home runs are Stanton, Trout, Harper, Machado, and Judge with Alonzo as an honorable mention. It does not put Juan Sodto in there. That to me is interesting, but I also I guess I’m not surprised because wait, top five prospects for 500 plus homers. How many does Stanton have? Stanton has what? 460. Why don’t I know how much Stanton has? Well, I don’t keep track of the homers all the time, so I guess that would kind of make sense. Kyle Schwarber is up and he takes up high for ball one. Stan has hit 20 this year. John Carl is 35 years old. Wow. He’s at 449. Okay. One pitch and there is a foul ball. I definitely think Stanton will get there. Stanton’s only had one season though where he’s hit over 40 and that was his 59 year. One ball, two strikes to Kyle Schwber. Woodford is still pitching and warming up his Don for the bottom of the ninth. I just had that problem with hamburger from my from my hamburger helper JJ. I’m happy somebody else left. Two balls, two strikes to Kyle Schwarber. He’s 0 for three. I’m happy somebody else got that. Was waiting for it. The two- two pitch. That ball’s popped up. It’s hit out over towards the left side and the catch will be made by Bla1 Alexander for the first out of the inning. H Diamondback should be ashamed of themselves. Fire Rob was the rally cry on this channel back in May, June, basically before the trade deadline because Rob had to play the bullpen arms that he had like Romano. You are right. Yes, that is correct. OM Ferguson. I like that. I like that. That’s funny. Well, ball no strikes. It was There’s still things I don’t like, but the one pitch that is up high for ball, too. Two balls, no strikes to Bryce Harper. Woodford does come set and he fires a cutter that misses high for ball three. So, it’s three balls, no strikes to Bryce. Harper’s two for three today. Looking to try to get on for the third time. Three 0 to Bryce and that’s outside for ball four. Part of me was thinking he was going to swing at a three-0 pitch. He did not though and he is on base for the third time this evening. [Music] Okay, so one out in the top of the ninth and a runner is on over at first and JT Riala will be up next. Giants and Dodgers are still on. It’s 6-2 LA. That game is in the top of the seventh. Here comes JT and he takes strike one. That was a sweeper. That was in there. The ball is one strike. There’s 3 seconds left on the pitch clock and the 01 swinging a miss. Lazar and Don are warming up in the pen. If it’s a safe situation, they’re going to go with Don, but if not, they’re trying to be a little bit mysterious. The O2 and that is outside for a ball. They’re trying to trick everybody. I see it. I see it. That’s Wow. One two pitch to JT. That’s a foul ball. Well, you know, it’s funny. We talk about sometimes how the Phillies don’t warm up two guys at once. I guess a lot of teams don’t really do that nowadays. You still I mean, you see it, but just like not as often as it used to be. 4 seconds left on the pitch clock. There’s the one-two pitch. And that is low for ball two. So, it’s now two balls, two strikes. Harper still leads off over at first. Next pitch to JT. It’s high for ball three. So the count is now full. Man, what a week, guys. What a week. Three balls, two strikes to Riom. And the next pitch, there’s a line drive hit out to right center field. That’s going to split the gap and go over the wall. And a ground roll double is hit by JT. That goes into the water. And so top of the ninth and two runners in scoring position for Philadelphia splash. Love it. I don’t know why I played the bell. That went into the presidentials pool and spa. So we got two runners on over at second and third base. [Music] All right, 36 pitches for Woodford. [Music] The Giants, however, did just score a run. They are down six-3 to the Dodgers. Should we do that game two just in case the Dodgers lose or no? [Music] What do you say, chat? Should we finish with that game or no? The pitch to Bone. There’s a line drive. Base it out to center field. And so Harper will score. JT will score as well. And so it is a two-run single by Bow. I forgot to mention, just forgot to mention that they put up the four fingers for Brandon Marsh and so bases were loaded and both came through and said, “How dare you?” [Music] Marsh does stop at seconds. [Music] Wonder who’s coming in now. Wasar or Duran. That’s funny. [Music] And now Castianos comes up. He homered his last time up and he takes away up high for ball one. JJ, if you could have any manager in MLB, who would it be? They can be still alive or not. I personally would like Jim Leland. Uh I would one pitch line drive it out to center field. That’ll get down for a base hit. Thomas just played it on a hop. Marsh is being waved home. Another RBI base hit for Philadelphia. [Music] This Castiana starting to get hot. [Music] Let’s go. Let’s go, champ. All right. So, Castianis does get on with an RBI single and we have a timeout taken on the mound. Guys, should we do the Dodgers game after this or no? They’re in the bottom of the seventh. The Dodgers again. If the Phillies do win and if the Dodgers do lose, the magic number to get the two seed does go down to two. It does. All right. So, they sat Don down. Wow. I’m shocked. No time to eat pizza in our ears when they score, baby. That’s right. Yeah. Something must be going on if that’s the case. Yes. Do the Dodgers nets. Okay. All right, they’re going to the bottom of the seventh. All right, top of the ninth, one away. Wilson is up and the pitch. That ball is fouled. I guess that means I got to get the iPad out. Okay. All right. Here’s the iPad. Where was this offense 23 months ago? Where was this offense back in May? 01 foul ball. And so it is no balls and two strikes [Music] charge. There we go. Phillies do lead it 8-2. They’ve extended their lead. Bow at a two-run single. Castianosis had an RBI single 02 to Wilson and that is outside and low for a ball. Hey, guess what else is still intact, guys? I don’t know if you guys been thinking about it, but Bader’s cycle alert is still a thing. If he can get on, if he can get up to the plate, that’d be awesome. the one-two pitch. That’s inside for ball two. He’s a triple, but still he came up in the eighth inning and people bet you were probably thinking that he’s not going to come on up. Two balls, two strikes, and the next pitch, check swing. Did he go? He did not. It was an O2 count. And now the count is full. We could do the Giants game after this. It’s fine. They’d be probably in the eighth inning by then. So 3-2 to Wilson. There’s a fly ball hit out to left field. It’s slicing foul and it will go out of play. Again, one last time, if you guys do still want to donate to the Familia of the Sodenomia Foundation in honor of my brother Mitchell, you most certainly can uh by clicking on the link that they will provide down below. My mods will provide it. If you have not subscribed already, by the way, please make sure that you guys do that, too, and hit that thumbs up button. One out top of the ninth. 32 to Wilson. There’s a fly ball hit out over towards shallow left field. Perdomo calls off McCarthy and he will make the catch for the second out of the inning. All right, come on. Get to Harrison Bader. Give him a chance, baby. Come on, Scott. Scott is 0 for four with two ground outs and two strikeouts as well. So once this is over, we’ll go to the Dodgers Giants game. That game is on Apple TV. the pitch. That ball’s going to get away from the catcher and that’s going to put runners at second and third for Philadelphia. Wonder if they’re going to call it a pass ball or a wild pitch because the ball did hit the glove of the catcher. It looked like it looked like Marina should have had that. At least in my eyes. Tried to backhand it and bounced off the bottom of his glove. One ball, no strikes. There’s 8 seconds left on the pitch clock. Phillies have put up three runs in this ninth inning. They also put up two in the eighth. The one pitch that’s in there for strike one. 13 hits for the Phillies. Eight runs. One ball, one strike. There’s five seconds left on the pitch clock and the pitch. And that’s outside for ball two. Cubs are getting swept out in the wild card. Oo against the Padres’s. Is it going to be Padres’s or Dodgers? I’m just kidding. Or am I? Two. One pitch to start. swinging a miss. And so the count is now two and two. Two balls and two strikes to Bryson. Come on, give Bader a chance. Give him a chance. Two two pitch. Fly ball hit out over towards left field. It’ll stay in the yard and the catch is made. and we’re going to go to the bottom of the ninth inning. The good news though is that the Phillies do get three runs and they lead it eight 8-2 and they will go to the bottom of the ninth inning. All right, guys. Um I know that some of you guys are not going to stay on for the Dodgers game after this. Um, but I do want to thank you all again from the bottom of my heart. For those of you that have donated, for those of you that have been on here, that have spreaded the word, uh, in honor of my brother. Really, thank you so so much. Uh, I’ve been saying thank you a lot, but I I truly mean the thank yous. Uh, I feel like I can never say that enough to all those people that have that, you know, that have really just done good, done great things, uh, and making a difference. You guys really are making a difference and it’s very just awesome to see. Uh, if you guys have not donated and you would still like to, uh, feel free to click on the link that the mods are posting, uh, down below. If you donate through the website, yes, you can donate through YouTube, but if you donate through the website, uh they the the foundation is actually doubling the amount that we raise on the website, which is absolutely awesome. Um and then tomorrow we get back into the regular swing of things and it’ll be it’ll be great. It’ll be really awesome. But with what we did during these past two days, I am just I’m I’m so proud. I I’m I’m so proud of what we’ve been able to accomplish. Really, we made it happen. We all did. And it’s nice. It feels so rewarding to be able to contribute to something positive, you know? It’s a good feeling. And again, like even ju just by you guys being on here and spreading the word, do you know how much that means? A lot. Max Lazar is out there on the mound for the Phillies and he will pitch the bottom of the ninth. First pitch to Thomas. That’s outside for ball one. Got the Giants game up on the iPad again. They’re in the top of the eighth. Here’s the one pitch that’s in there for strike one. It’s one ball, one strike. The next pitch, balls grounded, foul and out of play. One ball, two strikes to Alf Thomas, one two pitch. Ground ball it over to first base. Harper has it, takes it to the bag and there is out number one. [Music] There’s one away. It was good for everybody. I I agree. We shattered so many goals. I My original goal was just 500. And I learned that I set the the bar too low. But I I to be honest, I really I really did not know what to expect. I did not know. I had no clue. The pitch. There’s a fly ball. head out over towards center field. Bader gets under it. The catch is made and there’s one final out left to go out here in the desert. All right, let’s get going. Let’s go. [Music] [Applause] [Music] Jake McCarthy is up and he takes ball one. It’s low. It was a knuckle curve. So, it is one ball and no strikes. One out to go and then we’ll stay on for the rest of the Dodgers game to see if the Phillies can gain some ground against them. One ball, one strike to Jake McCarthy, who is 0 for three. Again, we’re in the bottom of the ninth. Here’s the one. And that is in there for strike two. Nova Nick, thank you so much, man. Final strike and the one two is outside for ball two. Congrats on your charity event, JJ. Thank you. Thank you. Thank you, JJ. Congrats on an amazing fundraising stream. Glad you managed to crush your goal. Love to see it. Have a good night and go Phils. Two two pitch. Fly ball hit out over towards left center field. Baders there. Makes the catch. Ball game over. Philadelphia wins by a final score of 8-2 out in the desert. And they start the series off with a bang. All right, the Phillies do win. Ring the bell. Philadelphia wins. [Music] [Music] [Music] Heat. Heat. [Music] Alrighty. Nice. Very, very good. All right. Um, again, if you were signing off right now, uh, I want to say thank you all so much for being on here. Um, we will most certainly get back into our regular playby-play calls tomorrow. Um but again, thank you for being on here. Um we’re going to watch the rest of the Dodgers Giants game. So now the Philly’s magic number to clinch the buy to clinch the number two seed is at three. So if the Dodgers the Dodgers are winning right now, but if somehow someway they end up losing, it would go down to two. So all right, let’s go on over there. Uh, awesome stuff that we did and we’ll talk a little bit more about it after uh, this game is done. But great win tonight by the Philadelphia Phillies. I was really happy with how things went. I thought Walker and Buer, Taiwan Walker and Walker Buer did very very well uh, for the most part and he didn’t have to go to any guy in in a high leverage spot. I was just hoping that they could go four, three innings each. They did. They They did plenty. They They went eight innings combined. That’s what you want. All right. So, in the Dodgers game, there’s one out in the bottom of the eighth. The count is two balls, no strikes to Freddy Freeman, and Seymour is pitching. So, it’s two and 0. That’s the count. Y’all think Bryce Harper uh think Bryce Harper gonna score a home run? Put a bet on him. Uh well, the game is over, my friend. The crowd is doing the Eagles chant. There’s three. Bottom of the eighth, one out in this Dodgers game. The three to one. There’s a ground ball. It’s hit over towards the second base side. Then the throw over the first is in time. This might be a little bit ahead because it’s on Apple TV again. Uh so it’s a you’re not able to to get it on a faster uh because it’s not on cable. Cable is quicker than the internet. Yeah, playoff seating has been locked in for a while. No surprise and no excitement. Well, I mean like the the Astros and the Mariners are tied like for the for the AL West. Like that is that is still kind of to me exciting. But yes, like your point is like that is is that that’s the only one like like that’s it. I don’t want to say that and I I just don’t want to say that. I just don’t want to say that there’s that there’s none. But but like your point your point is valid. I get it. I get it. Fine. Go. Yay. Penant races are extinct. We’re going to go to the top of the ninth inning. All right, so last chance for the Giants. We got to root for San Francisco, but I think that that’s going to be tough. Maybe not, though, because the Dodgers bullpen has been iffy. They’ve been not so strong. That was a big loss, too, for the Snakes. Didn’t really talk about that, but Cleveland making the move on Detroit. Yeah, that’s gotten a lot closer, too. But do you still think that it’s too little too late? Yeah. One race. I I I just I I I think that that’s like if Detroit loses. Okay. So So So what is that now? I didn’t get to check today. I know that this is an everyday thing, of course. Uh but did Detroit lose today? Yeah, that’s now two. And you know what? You’re right. You’re actually right now. Okay. I’m willing to say that that Guardians Detroit race is now officially a race because the the the Tigers have lost four in a row. They’re three and seven in their last 10 and the Guardians have won eight in a row. So that it is safe to say that now that that is a race. So So that’s two. That is two. You’re right about that. But even still, it’s not as meaningful. Do we really think that the Yankees I know that they’re three games in back of Toronto. Are they challenging Toronto with less than I don’t know how many games are left now, guys? 154 with like eight games to go. No, I don’t think so. I don’t think so. The Guardians also have played one less game than Detroit has. So yeah, I think that that’s I I I now have to say that I think that they are challenging them. So I’ll put that there. The the Padres’s, they’re not challenging the Dodgers right now once the Dodgers go on a weird losing streak and the Padres’s can can do that. Yeah. But yeah, the Mariners and Astros and Tigers and Guardians. Yeah, I would say that. I would say that two and a half out with eight games left. Yeah. Yep. All right. Top of the ninth. Here we go. No balls, one strike to Christian CS. The NL is set. Yes. The 01 swinging a miss. And so the count is now 0 and two. Wish that this was a little bit faster. No balls, two strikes. And the next pitch is taken for ball one. You two. And that’s down for a ball. Cole, you really want to know if the Padres’s have been concerning me. You’ve been asking me so many times, my friend. You’ve been asking me about those Padres’s. Are you a Padres’s fan, Cole? Just out of curiosity. I don’t mean that as a bad thing. I’m just curious. One ball, two strikes. And here’s the one, two. There’s a ground ball diving, stopped by Hernandez, but he’ll have to eat it up as he fumbled the ball with his bare hand. And so there we go. a lead off infield single to start off the top of the ninth inning for San Fran. There we go. Cole says, “No, I’m not a do I’m not a Padres’s fan.” Okay, just out of curiosity, the Padres’s don’t really scare me. If I said that they scared me at one point, it probably was like three weeks ago or so. Uh, but they don’t I wouldn’t say that anybody. Nobody scares me in the NL in the NL East. Like, as weird as that sounds right now, like, nobody scares me. The only thing that scares me is the Phillies bats going cold. Like, that’s the that’s the thing that’s still in the back of my mind. That that’s that’s it. That’s it. It’s in the back of my mind. 01. And that’s taken down for a ball. So it is one ball, one strike. Ramos is in the box facing Tanner Scott. Come on, Elliot. Let’s go. One-1 pitch. There’s a swing and a miss and the ball’s dropped by the catcher. Gets out in front of him, but not too far away. Oh, Hawks. That’s cool. Dodgers gave Padres’s a chance, but they didn’t take it. Correct. Are the Mets challenging? One, two, pitch, swing on a miss, and Tanner Scott able to get a strike out. And that’s how we start off the ninth after the infield single. Okay, so one out in the top of the ninth. Come on, Giants. Beat those Dodgers. Just come back. Adamus comes up and he swings and misses at the slider. So, it’s no balls, one strike. Oh, one pitch. That’s low. One ball, one strike. Tanner Scott gets set above the belt. He kicks. He deals. Swinging a miss. And so it’s one ball, two strikes to Willie Adamus. Two outs left in this game. Philly’s magic number to clench the two seed is at three. One and two is the count to Will Adamus. Last pitch. That’s low for ball two. So, it is two balls and two strikes. Come on, Willie. Chapman’s in the hole. Scott comes set and fires. Another foul ball by Willadamus. Scott kicks, fires, and that pitch is just inside for ball three. They tried to sell the call there. Almost payoff pitch that’s low and the tying run is coming up to the plate just like that. Great at bat there by William. [Music] Great plate appearance. Here comes Raphael Evers. I want to see Let’s Go uh SF in the chat. Let’s go SF. [Music] All right, let’s go. [Music] JJ was just a followup from the uh curiosity back from the Cincinnati series. At the time you felt the Padres were the biggest threat. Oh, did I? I probably did say that. I probably did. I don’t feel that way right now. If I said that, maybe I was high. There’s Raphael Des and the first pitch to Rafi is down for a ball. All right, so the Giants have runners on at first and second with one out in the top of the ninth. One pitch swinging a miss. That pitch was low. 6-3 LA looking for the Giants to try to tie it up in the ninth inning. One ball, one strike in the pitch. And that’s low for ball two. Why are we looking for the Giants to win, guys? Because we want the Phillies to get that buy against the Dodgers. That’s who they’re playing. The magic number for that is three. Two-1s. Another foul ball. Also, we want the Giants to find a way to get into that uh six seed. Take off the mats. Two balls, two strikes to Raphael Des. Scott kicks and fires and the pitch is outside for ball three. And so the count is now full. This Dodgers fan’s not happy. That pitch was a ball. my friend George. 3-2. A foul ball by Raphael Evers. The camera is literally on Dave Roberts right now. Payoff pitch and a cold strike three to Raphael Des. And there is out number two. He thought it was going to break a little bit more and so he thought about swinging but then he held his swing. He held up and he was down on strikes. That was a nice pitch thrown by Tanner Scott. Wow. There’s out number two. And the Giants are down to their final outs. Okay, [Music] so now it’s Matt Chapman who’s up. First pitch to Chapman. It’s popped up. It’s hit out over towards the infield. Bet says he has it. He’s waiting for it to come down. He’ll make the catch and the ball game is over. So, the Dodgers do beat the Giants by a final score of six-3. The magic number for the Phillies to clinch the two seed still does stand at three right now. So, it does not go down to two. Phillies today came in with a magic number of four to get the buy, but they did win. So, it’s just down to three instead. And so, the night of baseball is done. And, uh, so are we. All right. We just finished before 1:00 a.m. Okay. Very nice. Um, hopefully you’re all doing well and hopefully you guys have yourselves a great rest of your night. Um, for the final time, uh, again, if you guys do want to donate to the familiar Dutenomia Foundation in honor of my brother, uh, you’re more than welcome to do that. We have raised, uh, coming on into today, just on the website, we’ve raised over 25 or sorry, $2400. That was coming on into today. That was updated this morning. Um I can’t wait to see what the results are um tomorrow. So we’ve raised 2400 on the website and they’re doubling that. They’re doubling that. So we’ve put up $4,800 at least on the website and we’ve raised almost I want to say that we’ve raised almost $1,000 on YouTube. So um that’s really awesome. That’s so awesome. And I’m just really proud of everything that we’ve been able to to do. Uh I know that some people in the chat did say that they did uh donate, too. So I I would assume that we’ve gotten over 6,000. By far my proudest moment ever here on streaming. Uh it’s only going to continue to get better. If you did not listen to my first stream yesterday to hear about my brother to hear about FD and uh the Disotenomia Foundation, you definitely need to go check that out. Uh whenever you have a minute, whenever you have time. It’s going to be more than a minute. Um, I will update a VOD later this weekend and we will definitely have that up for you so that if uh, you know, for those of you that don’t like want to scramble through and look to see where the timestamps are for certain things, uh, we’ll have that available for you, too. Don’t you worry about that. Uh, but I’m I’m super proud of not just of not just you guys and not just uh all of you. I really am proud of you guys, but I also I got to give myself a little pat on the back, too, because I was really scared. I was actually I was I was nervous about doing this. And I’m really proud that I did it. Very proud. when you’re proud of yourself. Uh that’s that says a lot. There’s times where I feel like that we don’t that we aren’t so happy with ourselves and we don’t give ourselves pats on the back. But I I have to do that, too. And again, I’m super proud of all of you. Don’t get it twisted. I really am, man. It’s a feel-good moment for me. It is. So, more good things to come and thank you all very much. I will definitely be making a list of everybody that donated and I will give you all a huge shout out and I will be writing all of you messages if you did if you did do it. I if you super chatted me over on YouTube, there’s no way that I can personally DM you uh or email you. But uh if you guys want to message me on the hotline to let me know uh that you guys donated. I mean, I can see you donated, but if you if you can message me on the hotline or even just through email that and and just say, “Hey, hey JJ,” or something like that, I’ll know that you donated. But I just I want to personally reach out to you because you deserve that. you really do. Um, and for those of you that just supported and spreaded the word, uh, that’s just awesome. That’s that’s just super nice. Yeah, I’m going to sleep well tonight. I slept very well last night. And uh yeah, now that it’s done, just got to just got to get everything ready, you know, got to write that check from YouTube. We’ll send it over directly to them. And uh yeah, I want to thank I I do want to take the time to also thank the uh to to thank Laney first and foremost for allowing this to happen and everybody um from the Disenomia Foundation, Julia uh for updating me and for and Abala as well. I really appreciate you guys. So, and of course, thank you to my family. Thank you to Gabe. Uh, thank you to everybody that has helped me out. Scott, all the mods, my family. None of this is possible without you guys. With that, I think I’m going to sign off. I do. I think that that is going to be it for me. Great day. Great two days. I think it was awesome. foundation doubled the direct donations, too. Yep. We saw home videos of JJ as a kid. Yeah. Very successful and well done event. Better than anyone could have hoped. Yeah. I’m Let me just say one other thing, too. Um I’m really hoping that other people that have not been uh you know that have been hesitant on doing something like this, I’m hoping that they see that this does work. You know, I think that some people that are out there and it takes a lot. It takes a lot to host something like this. It it it’s a lot of coordinating. It’s a lot of of time. It’s it’s creativity. And there’s a lot that does go into this. But I’m really hoping, and we’ve seen other people do this successfully, like Tom and and other people on the platform, even in the sports world, but I’m just hoping that I could also spread ideas to other creators that are on here and other people that do this because I think that that’s also important for them to get a perspective on things, you know? I think it’s really awesome. Yes, we just hit 180 likes. Thank you. Hit the thumbs up button on your way out. Oh, yeah. Yeah. All right, that’s going to wrap it up. I love you too, Shante. I love I love you guys. I love you, Larry, Scott, Tiffany, CoolJ. I mean, I could go on and on now. I started this whole wormhole. Sema, John, thank you guys. All right. Yep. That’s it, Lil. Good night and I will catch you all in the next one. Also, one last thing, be on the lookout for that Gatorade shower cuz we did get to 5K. I said I would do that at 5K. So, be on the lookout for that. Bye.

#phillies #diamondbacks #phils #dbacks

💙 FD Foundation Fundraiser Live – Honoring Mitchell 💙

Join me for a special 4-part livestream fundraiser in memory of my brother, Mitchell, who passed away from Familial Dysautonomia. Together with my YouTube community, we’re raising awareness and support for the Familial Dysautonomia Foundation, a cause that’s very close to my heart.
The Phillies take on the Diamondbacks tonight for a weekend set. Can they get the W?

Be sure to let JJ know your thoughts in the comments down below and tune into the Fundraising Stream and Phillies Dbacks game tonight @ 7:00 PM EST on “Play-By-Play With JJ”.

If you enjoy JJ’s Phillies PBP calls and podcasts, be sure to comment down below, hit the bell icon, and subscribe to “Play-By-Play With JJ” so that you don’t miss a pitch of Phillies ⚾!

You can also follow JJ on all social media platforms via LinkTree and email him at jasonjosephonair@gmail.com!

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